Adult congenital heart disease

Common Name(s)

Adult congenital heart disease

Adult congenital heart disease (CHD) is a heart abnormality that is present at birth (congenital) but causes complications in adulthood. The heart is a muscular organ that pumps blood to all the tissues in your body through a network of blood vessels. The right side of the heart pumps blood through the lungs where it picks up oxygen. The left side of the heart receives the blood containing oxygen and pumps it to the rest of your body. Different types of CHDs include defects in the walls of the heart (known as a hole in the heart), which can cause oxygenated blood to mix with deoxygenated blood; defects in the valves between the chambers of the heart, which may cause abnormal blood flow; and heart muscle abnormalities, which can lead to heart failure. Most CHDs first appear while a baby is still developing in the womb.

Symptoms of a CHD may occur in adulthood for two reasons: they may recur many years after the initial repair or the CHD may be mild enough not to cause complications during infancy but can evolve into a more serious issue as an adult. Common CHD symptoms may include an abnormal heart rhythm, a bluish tint to the skin, shortness of breath, tiring quickly when active, dizziness, fainting, and development of swollen body tissues or organs.

To diagnose adult CHD, a physician will conduct a physical exam and several diagnostic tests. These may include an echocardiogram (image of the heart produced by sound waves), electrocardiogram (measurement of electrical activity in the heart), MRI (image of the heart produced by magnetic field and radio frequency), chest x-ray (electromagnetic image of the heart), or cardiac catheterization (measurement of blood flow and pressure in the heart). Treatment of CHD depends on the severity, as some mild heart defects do not require treatment while others may need medication or surgery. Talk with a physician about the right treatment for you.

Source: Advocacy organizations associated with the condition.

 

Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Adult congenital heart disease" for support, advocacy or research.

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Congenital Heart Information Network

C.H.I.N. is a national organization that provides reliable information, advocacy, support services, financial assistance and resources to families of children with congenital heart defects and acquired heart disease, and adults with congenital heart defects.

Last Updated: 6 Apr 2015

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Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Adult congenital heart disease" for support, advocacy or research.

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Congenital Heart Information Network

C.H.I.N. is a national organization that provides reliable information, advocacy, support services, financial assistance and resources to families of children with congenital heart defects and acquired heart disease, and adults with congenital heart defects.

http://tchin.org

Last Updated: 6 Apr 2015

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Scientific Literature

Articles from the PubMed Database

Research articles describe the outcome of a single study. They are the published results of original research.
The terms "Adult congenital heart disease" returned 104 free, full-text research articles on human participants. First 3 results:

Prognostic Value of Pulmonary Artery Compliance in Patients with Pulmonary Arterial Hypertension Associated with Adult Congenital Heart Disease.
 

Author(s): Xiao-Ling Cheng, Zhi-Hong Liu, Qing Gu, Xin-Hai Ni, Qin Luo, Zhi-Hui Zhao, Jian-Guo He, Chang-Ming Xiong

Journal: Int Heart J. 2017 Oct;58(5):731-738.

 

In congenital heart disease (CHD), the presence of pulmonary arterial hypertension (PAH) is associated with a poor prognosis. In this study, we aim to investigate the role of pulmonary artery compliance (Cp) in predicting the mortality of PAH associated with adult congenital heart ...

Last Updated: 2 Oct 2017

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Electrophysiology Updates in Adult Congenital Heart Disease.
 

Author(s): Wilson W Lam

Journal:

 

Last Updated: 25 Oct 2016

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Short-Term Costs and Hospitalization Rates in Patients With Adult Congenital Heart Disease After Pulmonic Valve Replacement.
 

Author(s): Deana Mikhalkova, Eric Novak, Ari Cedars

Journal: Am. J. Cardiol.. 2016 Nov;118(10):1552-1557.

 

In the adult congenital heart disease (ACHD) population, pulmonary valve replacement (PVR) is a common intervention, its benefit, however, has been incompletely investigated. This study investigates short- and intermediate-term outcomes after PVR in ACHD. Using State Inpatient Databases ...

Last Updated: 27 Sep 2016

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Reviews from the PubMed Database

Review articles summarize what is currently known about a disease. They discuss research previously published by others.
The terms "Adult congenital heart disease" returned 22 free, full-text review articles on human participants. First 3 results:

Emerging Research Directions in Adult Congenital Heart Disease: A Report From an NHLBI/ACHA Working Group.
 

Author(s): Michelle Gurvitz, Kristin M Burns, Ralph Brindis, Craig S Broberg, Curt J Daniels, Stephanie M P N Fuller, Margaret A Honein, Paul Khairy, Karen S Kuehl, Michael J Landzberg, William T Mahle, Douglas L Mann, Ariane Marelli, Jane W Newburger, Gail D Pearson, Randall C Starling, Glenn R Tringali, Anne Marie Valente, Joseph C Wu, Robert M Califf

Journal: J. Am. Coll. Cardiol.. 2016 Apr;67(16):1956-64.

 

Congenital heart disease (CHD) is the most common birth defect, affecting about 0.8% of live births. Advances in recent decades have allowed >85% of children with CHD to survive to adulthood, creating a growing population of adults with CHD. Little information exists regarding survival, ...

Last Updated: 22 Apr 2016

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COCATS 4 Task Force 14: Training in the Care of Adult Patients With Congenital Heart Disease.
 

Author(s): Carole A Warnes, Ami B Bhatt, Curtis J Daniels, Linda D Gillam, Karen K Stout

Journal: J. Am. Coll. Cardiol.. 2015 May;65(17):1887-98.

 

Last Updated: 7 May 2015

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Call for a disease-specific patient-reported outcome tool in adult congenital heart disease.
 

Author(s): Ari M Cedars, John A Spertus

Journal: Circ Cardiovasc Qual Outcomes. 2014 Nov;7(6):971-4.

 

Last Updated: 22 Nov 2014

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Clinical Trial Information This information is provided by ClinicalTrials.gov

Northwest Adult Congenital Heart Disease Observatory
 

Status: Not yet recruiting

Condition Summary: Congenital Heart Disease

 

Last Updated: 7 Sep 2016

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Last Updated: 21 Dec 2015

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Health Literacy in Adults
 

Status: Recruiting

Condition Summary: Congenital Heart Disease

 

Last Updated: 25 May 2017

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