Adult congenital heart disease

Common Name(s)

Adult congenital heart disease

Adult congenital heart disease (CHD) is a heart abnormality that is present at birth (congenital) but causes complications in adulthood. The heart is a muscular organ that pumps blood to all the tissues in your body through a network of blood vessels. The right side of the heart pumps blood through the lungs where it picks up oxygen. The left side of the heart receives the blood containing oxygen and pumps it to the rest of your body. Different types of CHDs include defects in the walls of the heart (known as a hole in the heart), which can cause oxygenated blood to mix with deoxygenated blood; defects in the valves between the chambers of the heart, which may cause abnormal blood flow; and heart muscle abnormalities, which can lead to heart failure. Most CHDs first appear while a baby is still developing in the womb.

Symptoms of a CHD may occur in adulthood for two reasons: they may recur many years after the initial repair or the CHD may be mild enough not to cause complications during infancy but can evolve into a more serious issue as an adult. Common CHD symptoms may include an abnormal heart rhythm, a bluish tint to the skin, shortness of breath, tiring quickly when active, dizziness, fainting, and development of swollen body tissues or organs.

To diagnose adult CHD, a physician will conduct a physical exam and several diagnostic tests. These may include an echocardiogram (image of the heart produced by sound waves), electrocardiogram (measurement of electrical activity in the heart), MRI (image of the heart produced by magnetic field and radio frequency), chest x-ray (electromagnetic image of the heart), or cardiac catheterization (measurement of blood flow and pressure in the heart). Treatment of CHD depends on the severity, as some mild heart defects do not require treatment while others may need medication or surgery. Talk with a physician about the right treatment for you.

Source: Advocacy organizations associated with the condition.

 

Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Adult congenital heart disease" for support, advocacy or research.

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Congenital Heart Information Network

C.H.I.N. is a national organization that provides reliable information, advocacy, support services, financial assistance and resources to families of children with congenital heart defects and acquired heart disease, and adults with congenital heart defects.

Last Updated: 6 Apr 2015

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Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Adult congenital heart disease" for support, advocacy or research.

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Congenital Heart Information Network

C.H.I.N. is a national organization that provides reliable information, advocacy, support services, financial assistance and resources to families of children with congenital heart defects and acquired heart disease, and adults with congenital heart defects.

http://tchin.org

Last Updated: 6 Apr 2015

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Scientific Literature

Articles from the PubMed Database

Research articles describe the outcome of a single study. They are the published results of original research.
The terms "Adult congenital heart disease" returned 106 free, full-text research articles on human participants. First 3 results:

Prognostic Value of Pulmonary Artery Compliance in Patients with Pulmonary Arterial Hypertension Associated with Adult Congenital Heart Disease.
 

Author(s): Xiao-Ling Cheng, Zhi-Hong Liu, Qing Gu, Xin-Hai Ni, Qin Luo, Zhi-Hui Zhao, Jian-Guo He, Chang-Ming Xiong

Journal: Int Heart J. 2017 Oct;58(5):731-738.

 

In congenital heart disease (CHD), the presence of pulmonary arterial hypertension (PAH) is associated with a poor prognosis. In this study, we aim to investigate the role of pulmonary artery compliance (Cp) in predicting the mortality of PAH associated with adult congenital heart ...

Last Updated: 31 Dec 1969

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Feasibility of low radiation dose retrospectively-gated cardiac CT for functional analysis in adult congenital heart disease.
 

Author(s): Daniel W Groves, Laura J Olivieri, Sujata M Shanbhag, Kathie C Bronson, Jeannie H Yu, Evan A Nelson, Shirley F Rollison, Michael S Stagliano, Anitha S John, Karen Kuehl, Marcus Y Chen

Journal: Int. J. Cardiol.. 2017 Feb;228():180-183.

 

The use of cardiac computed tomography (CT) in the evaluation of adult congenital heart disease patients is limited due to concerns of high radiation doses. The purpose of this study was to prospectively assess whether low radiation dose cardiac CT is feasible to evaluate ventricular ...

Last Updated: 31 Dec 1969

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Design and Implementation of a Prospective Adult Congenital Heart Disease Biobank.
 

Author(s): Alexander R Opotowsky, Brittani Loukas, Christina Ellervik, Lilamarie E Moko, Michael N Singh, Elizabeth I Landzberg, Eric B Rimm, Michael J Landzberg

Journal: World J Pediatr Congenit Heart Surg. 2016 11;7(6):734-743.

 

Adults with congenital heart disease (ACHD) comprise a growing, increasingly complex population. The Boston Adult Congenital Heart Disease Biobank is a program for the collection and storage of biospecimens to provide a sustainable resource for scientific biomarker investigation in ACHD.

Last Updated: 31 Dec 1969

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Reviews from the PubMed Database

Review articles summarize what is currently known about a disease. They discuss research previously published by others.
The terms "Adult congenital heart disease" returned 22 free, full-text review articles on human participants. First 3 results:

Emerging Research Directions in Adult Congenital Heart Disease: A Report From an NHLBI/ACHA Working Group.
 

Author(s): Michelle Gurvitz, Kristin M Burns, Ralph Brindis, Craig S Broberg, Curt J Daniels, Stephanie M P N Fuller, Margaret A Honein, Paul Khairy, Karen S Kuehl, Michael J Landzberg, William T Mahle, Douglas L Mann, Ariane Marelli, Jane W Newburger, Gail D Pearson, Randall C Starling, Glenn R Tringali, Anne Marie Valente, Joseph C Wu, Robert M Califf

Journal: J. Am. Coll. Cardiol.. 2016 Apr;67(16):1956-64.

 

Congenital heart disease (CHD) is the most common birth defect, affecting about 0.8% of live births. Advances in recent decades have allowed >85% of children with CHD to survive to adulthood, creating a growing population of adults with CHD. Little information exists regarding survival, ...

Last Updated: 31 Dec 1969

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COCATS 4 Task Force 14: Training in the Care of Adult Patients With Congenital Heart Disease.
 

Author(s): Carole A Warnes, Ami B Bhatt, Curtis J Daniels, Linda D Gillam, Karen K Stout

Journal: J. Am. Coll. Cardiol.. 2015 May;65(17):1887-98.

 

Last Updated: 31 Dec 1969

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Call for a disease-specific patient-reported outcome tool in adult congenital heart disease.
 

Author(s): Ari M Cedars, John A Spertus

Journal: Circ Cardiovasc Qual Outcomes. 2014 Nov;7(6):971-4.

 

Last Updated: 31 Dec 1969

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Clinical Trial Information This information is provided by ClinicalTrials.gov

Northwest Adult Congenital Heart Disease Observatory
 

Status: Recruiting

Condition Summary: Congenital Heart Disease

 

Last Updated: 28 Nov 2017

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Health Literacy in Adults
 

Status: Recruiting

Condition Summary: Congenital Heart Disease

 

Last Updated: 25 May 2017

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Effect of Resistance Training in Adults With Complex Congenital Heart Disease
 

Status: Recruiting

Condition Summary: Congenital Heart Defect

 

Last Updated: 13 Sep 2017

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