Chronic illness

Common Name(s)

Chronic illness, Chronic disability

Chronic illness and chronic disability may refer to any health condition or disability that is long-term. Generally speaking, for a condition to be considered "chronic" its effects or the condition itself must last more than 3 months. Chronic conditions are more commonly non-communicable meaning they are not passed from person to person. They may have a genetic basis or run in families. Examples of chronic illnesses are heart disease, diabetes mellitus, cancer or long-term respiratory illness. Some may be acquired through the environment or by an accident. Some communicable conditions, like HIV/AIDS or hepatitis, are also considered chronic. Mental health conditions, developmental delays or disabilities, and impairments such as hearing or vision problems are also considered chronic illnesses/disabilities.

Most chronic conditions are long-term because there is no cure or treatment. However, many chronic conditions may be improved or better tolerated with medications or lifestyle changes. Some chronic illnesses or disabilities can be prevented by limiting exposure to certain things such as tobacco use, alcohol use, exposures to hazardous products, and maintaining a healthy body weight and lifestyle. Unfortunately lower income countries and regions have fewer resources to help manage chronic illness. Finding the right doctor or team of doctors to help one manage their condition is important. Support groups may be especially helpful for individuals with a chronic illness or disability.

Source: Advocacy organizations associated with the condition.

 

Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Chronic illness" for support, advocacy or research.

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About Special Kids

We support children with special needs and their families by providing information, peer support, and education, and building partnerships with professionals and communities.

Last Updated: 27 Feb 2013

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Advocacy for Patients with Chronic Illness, Inc.

To provide free information, advice and advocacy services to patients with chronic illnesses, in areas including health and disability insurance, Social Security disability, employment discrimination, school-based accommodations, and resource location.

Last Updated: 1 Mar 2013

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APS Foundation of America, Inc.

The APS Foundation of America, Inc. is dedicated to fostering and facilitating joint efforts in the areas of education, public awareness, research and patient services in an effective and ethical manner.

Last Updated: 12 Aug 2013

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Association of Gastrointestinal Motility Disorders, Inc. (AGMD)

AGMD is a nonprofit international organization which serves as an integral educational resource concerning digestive motility diseases and disorders. It also functions as an important information base for members of the medical and scientific communities. In addition, it provides a forum for patients suffering from digestive motility diseases and disorders as well as their families and members of the medical community.

Last Updated: 28 Feb 2015

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Contact a Family

Contact a Family improves the lives of all families with disabled children. With them, we transform their lives, break down barriers and tackle disadvantage through ambitious, collaborative and innovative work. We make a real and lasting impact and are a force for positive change.

Last Updated: 27 Feb 2013

View Details
Erfocentrum

Through providing objective, reliable information the Erfocentrum supports people in making informed choices regarding their own health and the health of their children. The Erfocentrum also supports people in forming their own personal opinions about social and ethical aspects of genetics and biomedical issues.

Last Updated: 29 Jan 2015

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Family Resource Center on Disabilities

To improve services for all children with disabilities.

Last Updated: 1 Mar 2013

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Family Voices in Oklahoma

Family Voices is a national grassroots clearing house for information and education about ways to assure and improve health care for children with disabilities and chronic conditions. As families and friends, we speak with love and knowledge on behalf or our children with special health care needs.

Last Updated: 24 Nov 2009

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Family Voices of California

Family Voices of California (FVCA) is a statewide grassroots clearinghouse for information and education about ways to assure and improve health care for children with disabilities and chronic conditions.

Last Updated: 5 May 2014

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Georgian Foundation for Genetic and Rare Diseases

Provide patients affected by rare diseases with free access to comprehensive treatment

Last Updated: 1 Mar 2013

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Myeloproliferative Disease Support Group Daily Digest

My name is Robert Tollen and I am the listowner of MPD-SUPPORT-L. Please know that there is more then one Internet myeloproliferative disease support list. We currently have over 2,500 subscribers and we've been around since 1994. To easily subscribe to MPD-SUPPORT-L by email, do the following: Email to: LISTSERV@LISTSERV.AOL.COM Subject line: blank or just a dash on AOL Body: SUBSCRIBE MPD-SUPPORT-L John Smith (Substitute your first and last name for John Smith's) Our MPD-SUPPORT-L web site, http://members.aol.com/mpdsupport, offers interesting information on chronic myelogenous leukemia, polycythemia vera, essential thrombocythemia, agnogenic myeloid metaplasia, myelodysplasia, and myelofibrosis. Anyone - patient, family member, or health professional, is welcome to join our growing list of subscribers. Our archives are available for you to research information. Use our EZ web interface to post a message, to reach a listowner, to subscribe, to unsubscribe, to vacation stop and r

Last Updated: 24 Nov 2009

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PARENT TO PARENT OF NYS

Parent to Parent of New York State's mission is to connect and support parents of children with special needs.

Last Updated: 1 Mar 2013

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Rest Ministries, Inc.

Rest Ministries, Inc. is a non-profit Christian organization that exists to serve people who live with chronic illness or pain, and their families, by providing spiritual, emotional, relational, and practical support through a variety of programs and resources.

Last Updated: 15 Apr 2014

View Details
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Self Help Queensland, Inc.

Supporting people to find their own solutions to improve well being.

Last Updated: 24 Nov 2009

View Details
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Starlight Children's Foundation

Helping seriously ill children and their families cope with their pain, fear and isolation through entertainment, education and family activities.

Last Updated: 1 Mar 2013

View Details
Statewide Parent Advocacy Network

The vision of the Statewide Parent Advocacy Network (SPAN) is that all families will have the resources and support they need to ensure that their children become fully participating and contributing members of our communities and society. Our mission is to empower and support families and inform and involve professionals and others interested in the healthy development and education of children and youth. SPAN’s foremost commitment is to children and families with the greatest need due to disability; poverty; discrimination based on race, sex, language, immigrant, or homeless status; involvement in the foster care, child welfare, or juvenile justice systems; geographic location; or other special circumstances. Our motto is “Empowered Parents: Educated, Engaged, Effective."

Last Updated: 1 Mar 2013

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The Compassionate Friends

When a child dies, at any age, the family suffers intense pain and may feel hopeless and isolated. The Compassionate Friends provides highly personal comfort, hope, and support to every family experiencing the death of a son or a daughter, a brother or a sister, or a grandchild, and helps others better assist the grieving family.

Last Updated: 1 Mar 2013

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General Support Organizations

Not finding the support you need? Show General Support Organizations

 
 
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How do you compare to others with this condition?

Privately answer questions about your health. Let resources, you select, come to you.

Anonymously share and see how your answers compare with others with this condition while privately providing key pieces of information to medical researchers, disease advocacy groups, and others ONLY YOU select to help speed up cures and better alternatives.

 
 

Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Chronic illness" for support, advocacy or research.

Logo
About Special Kids

We support children with special needs and their families by providing information, peer support, and education, and building partnerships with professionals and communities.

http://www.aboutspecialkids.org/

Last Updated: 27 Feb 2013

View Details
Advocacy for Patients with Chronic Illness, Inc.

To provide free information, advice and advocacy services to patients with chronic illnesses, in areas including health and disability insurance, Social Security disability, employment discrimination, school-based accommodations, and resource location.

http://www.advocacyforpatients.org

Last Updated: 1 Mar 2013

View Details
APS Foundation of America, Inc.

The APS Foundation of America, Inc. is dedicated to fostering and facilitating joint efforts in the areas of education, public awareness, research and patient services in an effective and ethical manner.

http://www.apsfa.org

Last Updated: 12 Aug 2013

View Details
Association of Gastrointestinal Motility Disorders, Inc. (AGMD)

AGMD is a nonprofit international organization which serves as an integral educational resource concerning digestive motility diseases and disorders. It also functions as an important information base for members of the medical and scientific communities. In addition, it provides a forum for patients suffering from digestive motility diseases and disorders as well as their families and members of the medical community.

http://www.agmd-gimotility.org

Last Updated: 28 Feb 2015

View Details
Contact a Family

Contact a Family improves the lives of all families with disabled children. With them, we transform their lives, break down barriers and tackle disadvantage through ambitious, collaborative and innovative work. We make a real and lasting impact and are a force for positive change.

http://www.cafamily.org.uk/

Last Updated: 27 Feb 2013

View Details
Erfocentrum

Through providing objective, reliable information the Erfocentrum supports people in making informed choices regarding their own health and the health of their children. The Erfocentrum also supports people in forming their own personal opinions about social and ethical aspects of genetics and biomedical issues.

http://www.erfelijkheid.nl

Last Updated: 29 Jan 2015

View Details
Logo
Family Resource Center on Disabilities

To improve services for all children with disabilities.

http://www.frcd.org

Last Updated: 1 Mar 2013

View Details
Logo
Family Voices in Oklahoma

Family Voices is a national grassroots clearing house for information and education about ways to assure and improve health care for children with disabilities and chronic conditions. As families and friends, we speak with love and knowledge on behalf or our children with special health care needs.

http://OKVoices.org

Last Updated: 24 Nov 2009

View Details
Family Voices of California

Family Voices of California (FVCA) is a statewide grassroots clearinghouse for information and education about ways to assure and improve health care for children with disabilities and chronic conditions.

http://www.familyvoicesofca.org

Last Updated: 5 May 2014

View Details
Logo
Georgian Foundation for Genetic and Rare Diseases

Provide patients affected by rare diseases with free access to comprehensive treatment

Last Updated: 1 Mar 2013

View Details
Logo
Myeloproliferative Disease Support Group Daily Digest

My name is Robert Tollen and I am the listowner of MPD-SUPPORT-L. Please know that there is more then one Internet myeloproliferative disease support list. We currently have over 2,500 subscribers and we've been around since 1994. To easily subscribe to MPD-SUPPORT-L by email, do the following: Email to: LISTSERV@LISTSERV.AOL.COM Subject line: blank or just a dash on AOL Body: SUBSCRIBE MPD-SUPPORT-L John Smith (Substitute your first and last name for John Smith's) Our MPD-SUPPORT-L web site, http://members.aol.com/mpdsupport, offers interesting information on chronic myelogenous leukemia, polycythemia vera, essential thrombocythemia, agnogenic myeloid metaplasia, myelodysplasia, and myelofibrosis. Anyone - patient, family member, or health professional, is welcome to join our growing list of subscribers. Our archives are available for you to research information. Use our EZ web interface to post a message, to reach a listowner, to subscribe, to unsubscribe, to vacation stop and r

http://www.myeloproliferative.org

Last Updated: 24 Nov 2009

View Details
PARENT TO PARENT OF NYS

Parent to Parent of New York State's mission is to connect and support parents of children with special needs.

http://www.parenttoparentnys.org/

Last Updated: 1 Mar 2013

View Details
Logo
Rest Ministries, Inc.

Rest Ministries, Inc. is a non-profit Christian organization that exists to serve people who live with chronic illness or pain, and their families, by providing spiritual, emotional, relational, and practical support through a variety of programs and resources.

http://www.restministries.org

Last Updated: 15 Apr 2014

View Details
Logo
Self Help Queensland, Inc.

Supporting people to find their own solutions to improve well being.

http://www.selfhelpqld.org.au

Last Updated: 24 Nov 2009

View Details
Logo
Starlight Children's Foundation

Helping seriously ill children and their families cope with their pain, fear and isolation through entertainment, education and family activities.

http://www.Starlight.org

Last Updated: 1 Mar 2013

View Details
Statewide Parent Advocacy Network

The vision of the Statewide Parent Advocacy Network (SPAN) is that all families will have the resources and support they need to ensure that their children become fully participating and contributing members of our communities and society. Our mission is to empower and support families and inform and involve professionals and others interested in the healthy development and education of children and youth. SPAN’s foremost commitment is to children and families with the greatest need due to disability; poverty; discrimination based on race, sex, language, immigrant, or homeless status; involvement in the foster care, child welfare, or juvenile justice systems; geographic location; or other special circumstances. Our motto is “Empowered Parents: Educated, Engaged, Effective."

http://www.spanadvocacy.org/

Last Updated: 1 Mar 2013

View Details
Logo
The Compassionate Friends

When a child dies, at any age, the family suffers intense pain and may feel hopeless and isolated. The Compassionate Friends provides highly personal comfort, hope, and support to every family experiencing the death of a son or a daughter, a brother or a sister, or a grandchild, and helps others better assist the grieving family.

http://www.compassionatefriends.org

Last Updated: 1 Mar 2013

View Details

 

General Support Organizations

Not finding the support you need? Show General Support Organizations

 
 
 
 
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General Resources

APS Foundation of America, Inc Fan Page

The APS Foundation of America, Inc. is the leading United States nonprofit health agency dedicated to bringing national awareness to Antiphospholipid Antibody Syndrome (APS).

Updated 13 Nov 2012

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Blogs

APS Friends & Support Forum

Are you looking for Support for Antiphospholipid Antibody Syndrome, APS, APLS, APLA, Hughes Syndrome, or Sticky Blood? Well you've come to the right place! This is an private forum for people who have Antiphospholipid Antibody Syndrome, friends, fam

Updated 13 Nov 2012

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Scientific Literature

Articles from the PubMed Database

Research articles describe the outcome of a single study. They are the published results of original research.
The terms "Chronic illness" returned 475 free, full-text research articles on human participants. First 3 results:

Addiction is a Chronic Medical Illness.
 

Author(s): Eric D Morse

Journal: N C Med J. ;79(3):163-165.

 

Addiction is a chronic medical illness and needs to be viewed as such. For too long addiction has been viewed as episodic and has been treated in a 28-day inpatient rehab or 12-week outpatient program. That fact may explain why treatment outcomes for medication-assisted treatment ...

Last Updated: 31 Dec 1969

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Post-millennial trends of socioeconomic inequalities in chronic illness among adults in Germany.
 

Author(s): Jens Hoebel, Benjamin Kuntz, Irene Moor, Lars Eric Kroll, Thomas Lampert

Journal:

 

Time trends in health inequalities have scarcely been studied in Germany as only few national data have been available. In this paper, we explore trends in socioeconomic inequalities in the prevalence of chronic illness using Germany-wide data from four cross-sectional health surveys ...

Last Updated: 31 Dec 1969

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A Narrative Approach to Healing Chronic Illness.
 

Author(s): Thomas R Egnew

Journal: Ann Fam Med. 2018 03;16(2):160-165.

 

Many clinicians may feel poorly prepared to manage patient suffering resulting from the travails of chronic illness. This essay explores the thesis that chronically and terminally ill patients can be holistically healed by transcending the suffering occasioned by the degradations ...

Last Updated: 31 Dec 1969

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Reviews from the PubMed Database

Review articles summarize what is currently known about a disease. They discuss research previously published by others.
The terms "Chronic illness" returned 85 free, full-text review articles on human participants. First 3 results:

[Solutions against Declining Birthrates Confronting Japan's Aging Society by Supporting Female Workers in Harmonizing Work with Their Health and Social Issues: Fertility, Chronic Illness, and Raising Children].
 

Author(s): Go Muto, Kazuhito Yokoyama, Motoki Endo

Journal: Nihon Eiseigaku Zasshi. 2018 ;73(2):200-209.

 

Japan is currently facing serious social problems related to low birth rates and aging. We propose two possible solutions from the perspective of occupational health. First, companies should establish support systems to help working women with pregnancy and childbirth. Such systems ...

Last Updated: 31 Dec 1969

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Chronic critical illness: are we saving patients or creating victims?
 

Author(s): Sergio Henrique Loss, Diego Silva Leite Nunes, Oellen Stuani Franzosi, Gabriela Soranço Salazar, Cassiano Teixeira, Silvia Regina Rios Vieira

Journal: Rev Bras Ter Intensiva. ;29(1):87-95.

 

The technological advancements that allow support for organ dysfunction have led to an increase in survival rates for the most critically ill patients. Some of these patients survive the initial acute critical condition but continue to suffer from organ dysfunction and remain in an ...

Last Updated: 31 Dec 1969

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Defining Pediatric Chronic Critical Illness for Clinical Care, Research, and Policy.
 

Author(s): Miriam C Shapiro, Carrie M Henderson, Nancy Hutton, Renee D Boss

Journal: Hosp Pediatr. 2017 04;7(4):236-244.

 

Chronically critically ill pediatric patients represent an emerging population in NICUs and PICUs. Chronic critical illness has been recognized and defined in the adult population, but the same attention has not been systematically applied to pediatrics. This article reviews what ...

Last Updated: 31 Dec 1969

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Clinical Trial Information This information is provided by ClinicalTrials.gov

Communitas: A Program for Teens Living With Chronic Illness and Their Families
 

Status: Recruiting

Condition Summary: Chronic Illness

 

Last Updated: 25 May 2017

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A Theory-Based Patient Portal eLearning Program for Older Adults With Chronic Illnesses
 

Status: Recruiting

Condition Summary: Patient Portals; Chronic Disease; Older Adults

 

Last Updated: 7 Feb 2018

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South China Prospective Cohort Study of Chronic Disease
 

Status: Recruiting

Condition Summary: Chronic Disease

 

Last Updated: 12 Sep 2017

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