Developmental disability

Common Name(s)

Developmental disability

Developmental disabilities include conditions with mental or physical disabilities. These disabilities begin early in life (by definition before age 22 years) and last throughout the person's lifetime. Some developmental disabilities are only physical such as blindness. Others may include learning, behavioral or language difficulties. Some are a combination of physical and intellectual disabilities. Developmental disabilities impact day-to-day functioning, though to widely varying degrees. Many times children with developmental disabilities will be slower to reach certain milestones. Children reach milestones such as crawling, walking and talking at different paces, but there are milestone guides to help determine if a child is on the right track.

Many developmental disabilities begin even before birth, some may occur afterwards as a result of injury, infection or other trauma. Most are thought to be caused by a combination of both genetic and environmental factors. Often times, the reason for the developmental disability is unknown. Risk factors during pregnancy include tobacco and alcohol use, toxin, chemical or drug exposures, or infections. Untreated jaundice after birth, low birth weight and premature birth may also play a role. Some examples of developmental disabilities include fetal alcohol syndrome (due to maternal alcohol use during pregnancy) and genetic conditions such as Fragile X and Down syndrome.

It is estimated that 1 in 6 children in the United States has a form of developmental disability. Early diagnosis and intervention can have a significant impact on a child's chance to learn new skills. If a child is suspected to have a delay, a developmental screening assessment should be done. Don't hesitate to have you child screened if you feel there could be a delay. There are many options for help including school, work and social support. Support groups are a good source of information, networking and support.

Source: Advocacy organizations associated with the condition.

 

Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Developmental disability" for support, advocacy or research.

Logo
Any Baby Can, Inc.

Any Baby Can serves families that have a child under the age of 13 with a chronic illnes, developmental delay or health risk, through case management and other support services.

Last Updated: 1 Mar 2013

View Details
Logo
Arc of the United States

The Arc promotes and protects the human rights of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes.

Last Updated: 1 Jun 2015

View Details
Logo
Arc Wisconsin Disability Association, Inc.

The Arc-Wisconsin strives to be a major force in advocating and promoting self-determined quality of life opportunities for people with developmental and related disabilities and their families. This will be accomplished through: • Public policy and program design initiatives • Fiscal and program support to local chapters of the Arc • Substantially expanded resources, which are used efficiently and effectively in carrying out statewide and local programs • Advocacy for people with disabilities living in the community

Last Updated: 15 Apr 2013

View Details
KCNQ2 Cure Alliance

The mission of KCNQ2 Cure Alliance is to educate and to advance research leading to treatments or a cure for patients living with the genetic disorder KCNQ2 Epilepsy.

Last Updated: 12 Dec 2015

View Details
Logo
Missouri Family to Family

Missouri Family to Family provides customized information that allows families and individuals about needed resources and supports, navigating the maze of systems and services, as well as options to make their vision for their life possible. MOF2F also offers Sharing Our Strengths, which connects individuals with disabilities and/or their caregivers to a person who is available to listen with an open heart and open mind, offering emotional support, practical information, and/or shared experiences.

Last Updated: 15 Apr 2014

View Details
Logo
Oklahoma Family Network

To Provide emotional, informational and navigational support to those who have special health care needs or a disability, their families and the professionals who serve them. OFN promotes family/professional partnerships and family-centered care, assuring services are offered as recipients prefer..

Last Updated: 15 Apr 2013

View Details
The Arc of East Central Iowa

The Arc of East Central Iowa empowers people with intellectual and related disabilities to engage in lifelong opportunities to live, learn, work and play with dignity, freedom and full inclusion in their communities.

Last Updated: 11 Apr 2013

View Details
The Focus Foundation

The Focus Foundation is dedicated to helping children and families affected by X & Y Variations, Dyslexia, and/or Developmental Dyspraxia. The Focus Foundation believes that through increased awareness, early identification and syndrome-specific treatment, children with these conditions can reach their full potential.

Last Updated: 31 Mar 2015

View Details
VOR-Speaking up for people with intellectual & developmental disabilities

VOR is a national organization advocating for high quality care and human rights for all people with intellectual and developmental disabilities.

Last Updated: 29 Apr 2014

View Details

 

General Support Organizations

Not finding the support you need? Show General Support Organizations

 
 
Top

How do you compare to others with this condition?

Privately answer questions about your health. Let resources, you select, come to you.

Anonymously share and see how your answers compare with others with this condition while privately providing key pieces of information to medical researchers, disease advocacy groups, and others ONLY YOU select to help speed up cures and better alternatives.

 
 

Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Developmental disability" for support, advocacy or research.

Logo
Any Baby Can, Inc.

Any Baby Can serves families that have a child under the age of 13 with a chronic illnes, developmental delay or health risk, through case management and other support services.

http://anybabycansa.org

Last Updated: 1 Mar 2013

View Details
Logo
Arc of the United States

The Arc promotes and protects the human rights of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes.

http://www.thearc.org

Last Updated: 1 Jun 2015

View Details
Logo
Arc Wisconsin Disability Association, Inc.

The Arc-Wisconsin strives to be a major force in advocating and promoting self-determined quality of life opportunities for people with developmental and related disabilities and their families. This will be accomplished through: • Public policy and program design initiatives • Fiscal and program support to local chapters of the Arc • Substantially expanded resources, which are used efficiently and effectively in carrying out statewide and local programs • Advocacy for people with disabilities living in the community

http://www.arc-wisconsin.org

Last Updated: 15 Apr 2013

View Details
KCNQ2 Cure Alliance

The mission of KCNQ2 Cure Alliance is to educate and to advance research leading to treatments or a cure for patients living with the genetic disorder KCNQ2 Epilepsy.

http://www.kcnq2cure.org/

Last Updated: 12 Dec 2015

View Details
Logo
Missouri Family to Family

Missouri Family to Family provides customized information that allows families and individuals about needed resources and supports, navigating the maze of systems and services, as well as options to make their vision for their life possible. MOF2F also offers Sharing Our Strengths, which connects individuals with disabilities and/or their caregivers to a person who is available to listen with an open heart and open mind, offering emotional support, practical information, and/or shared experiences.

http://www.mofamilytofamily.org

Last Updated: 15 Apr 2014

View Details
Logo
Oklahoma Family Network

To Provide emotional, informational and navigational support to those who have special health care needs or a disability, their families and the professionals who serve them. OFN promotes family/professional partnerships and family-centered care, assuring services are offered as recipients prefer..

http://www.oklahomafamilynetwork.org

Last Updated: 15 Apr 2013

View Details
The Arc of East Central Iowa

The Arc of East Central Iowa empowers people with intellectual and related disabilities to engage in lifelong opportunities to live, learn, work and play with dignity, freedom and full inclusion in their communities.

http://www.arceci.org

Last Updated: 11 Apr 2013

View Details
The Focus Foundation

The Focus Foundation is dedicated to helping children and families affected by X & Y Variations, Dyslexia, and/or Developmental Dyspraxia. The Focus Foundation believes that through increased awareness, early identification and syndrome-specific treatment, children with these conditions can reach their full potential.

http://www.thefocusfoundation.org/

Last Updated: 31 Mar 2015

View Details
VOR-Speaking up for people with intellectual & developmental disabilities

VOR is a national organization advocating for high quality care and human rights for all people with intellectual and developmental disabilities.

http://www.vor.net

Last Updated: 29 Apr 2014

View Details

 

General Support Organizations

Not finding the support you need? Show General Support Organizations

 
 
 
 
Top

General Resources

Toolkit for Families

Advocacy resources for individuals with intellectual and developmental disabilities, including autism, and their families, guardians and advocates. Resources relate to residential choice, federal laws, cost comparisons, quality of care and more.

Updated 29 Apr 2014

Go To URL
Toolkit for Legislators, Policymakers, and Officials

Advocacy resources for legislators and policymakers re: to developmental disabilities, including autism, Resources relate to residential choice, federal laws, cost comparisons, quality of care and more.

Updated 29 Apr 2014

Go To URL
VOR Press Kit

VOR's 2014 Press Kit, a collection of written materials designed to introduce VOR to the media and others, is now available. For more information, please contact Julie Huso, Executive Director at jhuso@vor.net.

Updated 29 Apr 2014

Go To URL
Olmstead Resources

The Supreme Court, in its landmark Olmstead v. L.C.n decision, recognized the need for a range of services, based on individual choice and need, which respond to the varied and unique needs of the entire disability community.

Updated 29 Apr 2014

Go To URL
Learn About VOR

VOR's Mission, Policy and Positions, and more. Learn more about the only national non-profit organization advocating for high quality care and human rights based on individual choice and need.

Updated 29 Apr 2014

Go To URL
KCNQ2 Cure Website

Educational website for family with KCNQ2

Uploaded By: KCNQ2 Cure Alliance

Updated 12 Dec 2015

Go To URL
 
 
Top

Scientific Literature

Articles from the PubMed Database

Research articles describe the outcome of a single study. They are the published results of original research.
The terms "Developmental disability" returned 57 free, full-text research articles on human participants. First 3 results:

Chromosomal Microarray With Clinical Diagnostic Utility in Children With Developmental Delay or Intellectual Disability.
 

Author(s): Jin Sook Lee, Hee Hwang, Soo Yeon Kim, Ki Joong Kim, Jin Sun Choi, Mi Jung Woo, Young Min Choi, Jong Kwan Jun, Byung Chan Lim, Jong Hee Chae

Journal: Ann Lab Med. 2018 Sep;38(5):473-480.

 

Chromosomal microarray (CMA) testing is a first-tier test for patients with developmental delay, autism, or congenital anomalies. It increases diagnostic yield for patients with developmental delay or intellectual disability. In some countries, including Korea, CMA testing is not ...

Last Updated: 31 Dec 1969

Go To URL
Phenotypic Analysis of Korean Patients with Abnormal Chromosomal Microarray in Patients with Unexplained Developmental Delay/Intellectual Disability.
 

Author(s): Hyo Jeong Kim, Chang Il Park, Jae Woo Lim, Gyung Min Lee, Eunhae Cho, Hyon J Kim

Journal: Yonsei Med. J.. 2018 May;59(3):431-437.

 

The present study aimed to investigate chromosomal microarray (CMA) and clinical data in patients with unexplained developmental delay/intellectual disability (DD/ID) accompanying dysmorphism, congenital anomalies, or epilepsy. We also aimed to evaluate phenotypic clues in patients ...

Last Updated: 31 Dec 1969

Go To URL
De novo variants in are associated with hypotonia, developmental delay, intellectual disability, and autism.
 

Author(s): Akemi J Tanaka, Megan T Cho, Rebecca Willaert, Kyle Retterer, Yuri A Zarate, Katie Bosanko, Vikki Stefans, Kimihiko Oishi, Amy Williamson, Golder N Wilson, Alice Basinger, Tina Barbaro-Dieber, Lucia Ortega, Susanna Sorrentino, Melissa K Gabriel, Ilse J Anderson, Maria J Guillen Sacoto, Rhonda E Schnur, Wendy K Chung

Journal:

 

Using whole-exome sequencing, we identified seven unrelated individuals with global developmental delay, hypotonia, dysmorphic facial features, and an increased frequency of short stature, ataxia, and autism with de novo heterozygous frameshift, nonsense, splice, and missense variants ...

Last Updated: 31 Dec 1969

Go To URL

Reviews from the PubMed Database

Review articles summarize what is currently known about a disease. They discuss research previously published by others.
The terms "Developmental disability" returned 7 free, full-text review articles on human participants. First 3 results:

Intellectual Disability and Developmental Risk: Promoting Intervention to Improve Child and Family Well-Being.
 

Author(s): Keith A Crnic, Cameron L Neece, Laura Lee McIntyre, Jan Blacher, Bruce L Baker

Journal: Child Dev. 2017 03;88(2):436-445.

 

Initial intervention processes for children with intellectual disabilities (IDs) largely focused on direct efforts to impact core cognitive and academic deficits associated with the diagnosis. Recent research on risk processes in families of children with ID, however, has influenced ...

Last Updated: 31 Dec 1969

Go To URL
Where Environment Meets Cognition: A Focus on Two Developmental Intellectual Disability Disorders.
 

Author(s): I De Toma, L Manubens Gil, S Ossowski, M Dierssen

Journal: Neural Plast.. 2016 ;2016():4235898.

 

One of the most challenging questions in neuroscience is to dissect how learning and memory, the foundational pillars of cognition, are grounded in stable, yet plastic, gene expression states. All known epigenetic mechanisms such as DNA methylation and hydroxymethylation, histone ...

Last Updated: 31 Dec 1969

Go To URL
The co-occurrence of mental disorders in children and adolescents with intellectual disability/intellectual developmental disorder.
 

Author(s): Kerim M Munir

Journal: Curr Opin Psychiatry. 2016 Mar;29(2):95-102.

 

The study summarizes supportive epidemiological data regarding the true co-occurrence (comorbidity) and course of mental disorders in children with intellectual disability/intellectual developmental disorders (ID/IDD) across the lifespan.

Last Updated: 31 Dec 1969

Go To URL
 
 
Top

Clinical Trial Information This information is provided by ClinicalTrials.gov

Communication Outcomes for South African Children With Developmental Disabilities
 

Status: Recruiting

Condition Summary: Developmental Disability

 

Last Updated: 23 Jul 2018

Go to URL
Family Networks (FaNs) for Children With Developmental Disorders and Delays
 

Status: Recruiting

Condition Summary: Neurodevelopmental Disorders; Developmental Disabilities

 

Last Updated: 23 Feb 2017

Go to URL
The Investigation of Children With Developmental Delay and Children's Rehabilitation Common Case
 

Status: Recruiting

Condition Summary: Developmental Disabilities

 

Last Updated: 16 Jan 2018

Go to URL