Ectrodactyly Cardiopathy Dysmorphism

Common Name(s)

Ectrodactyly Cardiopathy Dysmorphism

Ectrodactyly, also know as split hand, cleft hand, and lobster claw hand, is a rare condition that takes multiple forms. The hand and/or feet of a person with ectrodactyly will be missing one or more fingers or toes (or even just a part of a finger or toe). In the most common form (which is described by its other names), people with ectrodactyly have their thumb and their little finger and ring finger and are missing their index finger and middle finger, with a similar situation of their feet. Sometimes people with ectrodactyly are born with syndactyly of their ring finer and little finer; this means that their ring finger and middle finger are fused or joined together. People are born with ectrodactyly and the condition can often be detected by ultrasound before the baby is born. Once the baby has been born, parents sometimes choose to have surgery on the baby’s hands and feet for cosmetic reasons (how it looks). There are multiple forms of ectrodactyly, one of which is ectrodactyly cardiopathy dysmorphism. This form causes the cleft hands and feet that were described earlier, along with heart disease. People with ectrodactyly cardiopathy dysmorphism will usually have high blood pressure or irregular heartbeats. Talk with your doctor if you or your child has been diagnosed with ectrodactyly cardiopathy dysmorphism to find the best treatment for you.

Source: Advocacy organizations associated with the condition.

 

Advocacy and Support Organizations

 

Condition Specific Organizations

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Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Ectrodactyly Cardiopathy Dysmorphism" for support, advocacy or research.

There are currently no organizations listed in Disease InfoSearch that support this condition. Create a listing.

 

 

General Support Organizations

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Scientific Literature

Articles from the PubMed Database

Research articles describe the outcome of a single study. They are the published results of original research.
The terms "Ectrodactyly Cardiopathy Dysmorphism" returned 0 free, full-text research articles on human participants.

Reviews from the PubMed Database

Review articles summarize what is currently known about a disease. They discuss research previously published by others.
The terms "Ectrodactyly Cardiopathy Dysmorphism" returned 0 free, full-text review articles on human participants.

 
 
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Symptoms, Diagnosis, and Treatment

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Clinical Trial Information This information is provided by ClinicalTrials.gov

There are currently no open clinical trials for this condition.