Ehlers-Danlos syndrome, type 4 variant

Common Name(s)

Ehlers-Danlos syndrome, type 4 variant

Ehlers-Danlos syndrome (EDS) is a rare tissue disorder that has six specific types. Ehlers-Danlos syndrome affects a person’s connective tissue, the tissue that separates, connects and supports different organs in the body. Collagen, the protein in connective tissue, is affected most by EDS. Depending upon the type of EDS an individual has, their skin, joins, muscles, ligaments, blood vessels, and visceral organs can be affected. Ehlers-Danlos syndrome type 4 has symptoms such as translucent skin, easy bruising, and intestinal problems. Treatment for Ehlers-Danlos syndrome type 4 includes doctor’s appointments to check from broken blood vessels and any problems with your organs. Talk with your doctor to find the best treatment for you if you have been diagnosed with Ehlers-Danlos syndrome type 4.

Source: Advocacy organizations associated with the condition.

 

Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Ehlers-Danlos syndrome, type 4 variant" for support, advocacy or research.

Ehlers-Danlos Support UK

EDS UK was set up in 1987 to support, advise and inform those living with Ehlers-Danlos Syndrome. We aim to help them live a full, active and positive life. Over 25 years later, we remain the only UK based charity that exclusively represents and supports people with all types of EDS. We run regular events and conferences to bring our community together, and produce literature and merchandise to increase understanding and improve management of the condition. We have over 30 support groups around the country to provide our members with a local peer support network and we hope to expand this

Last Updated: 17 Aug 2015

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General Support Organizations

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How do you compare to others with this condition?

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Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Ehlers-Danlos syndrome, type 4 variant" for support, advocacy or research.

Ehlers-Danlos Support UK

EDS UK was set up in 1987 to support, advise and inform those living with Ehlers-Danlos Syndrome. We aim to help them live a full, active and positive life. Over 25 years later, we remain the only UK based charity that exclusively represents and supports people with all types of EDS. We run regular events and conferences to bring our community together, and produce literature and merchandise to increase understanding and improve management of the condition. We have over 30 support groups around the country to provide our members with a local peer support network and we hope to expand this

http://www.ehlers-danlos.org

Last Updated: 17 Aug 2015

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General Support Organizations

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Scientific Literature

Articles from the PubMed Database

Research articles describe the outcome of a single study. They are the published results of original research.
The terms "Ehlers-Danlos syndrome, type 4 variant" returned 0 free, full-text research articles on human participants.

Reviews from the PubMed Database

Review articles summarize what is currently known about a disease. They discuss research previously published by others.
The terms "Ehlers-Danlos syndrome, type 4 variant" returned 0 free, full-text review articles on human participants.

 
 
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Clinical Trial Information This information is provided by ClinicalTrials.gov

There are currently no open clinical trials for this condition.