Exstrophy of the Bladder-Epispadias

Common Name(s)

Exstrophy of the Bladder-Epispadias

Bladder exstrophy and epispadias is a congenital condition, meaning that individuals are born with it. In bladder exstrophy, the skin over the lower abdomen (belly) does not form properly, leaving the bladder, an internal organ that holds urine, exposed. In epispadias, the urethra, the tube that guides urine out of the body, does not form properly. In boys, the urethra may be very short and split. This can cause the urethra to come out at the top of the penis rather than at the end. The full length of the penis may be affected, making it very short and wide. In girls, the opening of the urethra is higher and wider than usual. The labia (folds of the vagina) are farther apart and and the clitoris (small sensitive part of the vagina) is split in two.The middle part of the pelvic bone (hip bone) of babies born with this condition may also be separated. Affected babies have trouble urinating and must undergo surgery. About one in 40,000 babies are born with this condition.

Source: Advocacy organizations associated with the condition.

 

Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Exstrophy of the Bladder-Epispadias" for support, advocacy or research.

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Hypospadias Epispadias Association

The Hypospadias and Epispadias Association, Inc. (HEA) is an organization founded in the year 2000 for the support and education of people born with hypospadias or epispadias and their families, loved ones, and medical care givers.

Last Updated: 25 Mar 2013

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General Support Organizations

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How do you compare to others with this condition?

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Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Exstrophy of the Bladder-Epispadias" for support, advocacy or research.

Logo
Hypospadias Epispadias Association

The Hypospadias and Epispadias Association, Inc. (HEA) is an organization founded in the year 2000 for the support and education of people born with hypospadias or epispadias and their families, loved ones, and medical care givers.

http://www.HEAinfo.org

Last Updated: 25 Mar 2013

View Details

 

General Support Organizations

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Scientific Literature

Articles from the PubMed Database

Research articles describe the outcome of a single study. They are the published results of original research.
The terms "Exstrophy of the Bladder-Epispadias" returned 0 free, full-text research articles on human participants.

Reviews from the PubMed Database

Review articles summarize what is currently known about a disease. They discuss research previously published by others.
The terms "Exstrophy of the Bladder-Epispadias" returned 0 free, full-text review articles on human participants.

 
 
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Symptoms, Diagnosis, and Treatment

There are currently no related results available in GeneReviews.

There are currently no related results available in Genetic Testing Registry.

 
 
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Clinical Trial Information This information is provided by ClinicalTrials.gov

There are currently no open clinical trials for this condition.