Familial Cold Autoinflammatory Syndrome (FCAS)
Common Name(s)
Familial Cold Autoinflammatory Syndrome (FCAS), Familial cold urticaria, Familial Cold Autoinflammatory Syndrome, Familial Cold Urticaria Syndrome
Advocacy and Support Organizations
Condition Specific Organizations
Following organizations serve the condition "Familial Cold Autoinflammatory Syndrome (FCAS)" for support, advocacy or research.
The Autoinflammatory Alliance is a 501 (c)(3) non-profit public charity dedicated to promoting awareness, proper diagnosis and treatment, and improved care for people with autoinflammatory diseases. We started in 2006 under the name, The NOMID Alliance with the same basic goal: to help patients with CAPS and other autoinflammatory diseases. We have a IRS approval as tax-exempt under both names.
Our mission is simple-Educate, Provide Awareness, and Fund Researchers who are committed to finding a cure. StopCAIDnow(501c3) is focused on providing tools to better educate Doctor’s and the community on AutoInflammatory diseases. There is a need for an understanding of these diseases so proper diagnosis can be made, and treatment can be started. This will help alleviate the inflammation process, 7 the pain that comes with it. Proper diagnosis is urgent for the prognosis of these diseases. If left untreated damage to the tissues, organs & vision(for some) will not only be irreversible but devastating
How do you compare to others with this condition?
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Advocacy and Support Organizations
Condition Specific Organizations
Following organizations serve the condition "Familial Cold Autoinflammatory Syndrome (FCAS)" for support, advocacy or research.
The Autoinflammatory Alliance is a 501 (c)(3) non-profit public charity dedicated to promoting awareness, proper diagnosis and treatment, and improved care for people with autoinflammatory diseases. We started in 2006 under the name, The NOMID Alliance with the same basic goal: to help patients with CAPS and other autoinflammatory diseases. We have a IRS approval as tax-exempt under both names.
http://www.autoinflammatory.org Our mission is simple-Educate, Provide Awareness, and Fund Researchers who are committed to finding a cure. StopCAIDnow(501c3) is focused on providing tools to better educate Doctor’s and the community on AutoInflammatory diseases. There is a need for an understanding of these diseases so proper diagnosis can be made, and treatment can be started. This will help alleviate the inflammation process, 7 the pain that comes with it. Proper diagnosis is urgent for the prognosis of these diseases. If left untreated damage to the tissues, organs & vision(for some) will not only be irreversible but devastating
http://www.stopcaidnow.orgRecommended Apps
Anonymously share and see how your answers compare with others with this condition while privately providing key pieces of information to medical researchers, disease advocacy groups, and others ONLY YOU select to help speed up cures and better alternatives.
Finding the right clinical trial for Familial Cold Autoinflammatory Syndrome (FCAS) can be challenging. However, with TrialsFinder (which uses the Reg4ALL database and privacy controls by Private Access), you can permit researchers to let you know opportunities to consider - all without revealing your identity.
General Resources
This comparative chart of Autoinflammatory Diseases lists symptoms, lab findings, genetic mutations and images for each disease.
This child-friendly book is for patients and their families to learn how to manage their injectable medications, and has a program to help children to discuss and make a plan of care, and goals with rewards to chart on a reusable white board page.
Scientific Literature
Articles from the PubMed Database
Research articles describe the outcome of a single study. They are the published results of original research.
The terms "Familial Cold Autoinflammatory Syndrome (FCAS)" returned 0 free, full-text research articles on human participants.
No free, full-text research articles on human participants are available at this time. Please click this link to visit the PubMed website for results on "Familial Cold Autoinflammatory Syndrome (FCAS)".
Reviews from the PubMed Database
Review articles summarize what is currently known about a disease. They discuss research previously published by others.
The terms "Familial Cold Autoinflammatory Syndrome (FCAS)" returned 0 free, full-text review articles on human participants.
No free, full-text review articles on human participants are available at this time. Please click this link to visit the PubMed website for results on "Familial Cold Autoinflammatory Syndrome (FCAS)".
Symptoms, Diagnosis, and Treatment
https://ghr.nlm.nih.gov/gene/NLRP3
https://ghr.nlm.nih.gov/gene/PLCG2
https://ghr.nlm.nih.gov/condition/nakajo-nishimura-syndrome
https://ghr.nlm.nih.gov/gene/NLRP12
https://ghr.nlm.nih.gov/condition/cold-induced-sweating-syndrome
https://ghr.nlm.nih.gov/condition/familial-dysautonomia
https://ghr.nlm.nih.gov/condition/muckle-wells-syndrome
https://ghr.nlm.nih.gov/condition/yao-syndrome
https://ghr.nlm.nih.gov/condition/raynaud-phenomenon
https://ghr.nlm.nih.gov/condition/familial-cylindromatosis
https://ghr.nlm.nih.gov/condition/familial-partial-lipodystrophy
https://ghr.nlm.nih.gov/condition/sting-associated-vasculopathy-with-onset-in-infancy
https://ghr.nlm.nih.gov/condition/familial-candidiasis
https://ghr.nlm.nih.gov/condition/otulipenia
https://ghr.nlm.nih.gov/condition/familial-hyperaldosteronism
https://ghr.nlm.nih.gov/condition/familial-adenomatous-polyposis
https://ghr.nlm.nih.gov/condition/familial-lipoprotein-lipase-deficiency
https://ghr.nlm.nih.gov/about/support-advocacy-groups
https://ghr.nlm.nih.gov/condition/familial-paroxysmal-nonkinesigenic-dyskinesia
There are currently no related results available in GeneReviews.
Clinical Trial Information This information is provided by ClinicalTrials.gov
Condition Summary: Cold Hypersensitivity
Condition Summary: Cold Hypersensitivity
Condition Summary: Neuropathy, Painful; Chemotherapy-induced Peripheral Neuropathy; Colorectal Cancer
Finding the right clinical trial for Familial Cold Autoinflammatory Syndrome (FCAS) can be challenging. However, with TrialsFinder (which uses the Reg4ALL database and privacy controls by Private Access), you can permit researchers to let you know opportunities to consider - all without revealing your identity.