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Finding useful health information on the Internet can be difficult, but we’re here to help. This page gathers quality information from trusted sources. You can learn more about the disease, visit handpicked websites, and find resources to help you in your daily life. Need more information? Click the menu on the left to find more!



Hearing lossHearing impairment
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Type of Disease: Not available

Trusted Medical Sites

Mayo Clinic A website that provides disease symptoms and treatment information.

Support Organizations

Support organizations can provide help and guidance in areas such as peer matching, education and training, and therapy and counseling.

Disease Resources

Resources can help guide your quest for factual and reliable information.
Displaying 1-3 of 3 results.
Usher Syndrome Conference Calls
Added On: Oct 31, 2014
Category: General
The Coalition holds monthly conference calls in which leading experts talk about the latest news and research impacting families with Usher Syndrome. Live captioning is provided. Transcripts and past presentations can be found on our website.
Usher Syndrome Blog
Added On: Oct 31, 2014
Category: Blogs
The Usher Syndrome Blog touches on a lot of issues that Usher families face.
Usher Syndrome Registry
Added On: Oct 31, 2014
Category: General
The Usher Syndrome Registry bridges the gap between researchers and patients. Building the registry is a fundamental step towards quickening the pace of discovery and ensuring access to patients as more clinical trials are launched.