Hidradenitis suppurativa

Common Name(s)

Hidradenitis suppurativa, Hidradenitis suppurativa familial

Hidradenitis suppurativa (HS) is a rare condition that causes abscesses and cysts to form on a person’s skin. The most commonly affected areas are the underarms, under the breasts, inner thighs, groin, and buttocks. Though this disease is not contagious, it can be extremely painful for that affected person. Cysts that form from HS can go through periods of inflammation, swelling to the size of golf and even tennis balls. In certain cases, a small incision can be made to drain the cyst. In more severe cases sinus tracts can form between cysts, which can lead to open wounds that take a long time to heal. Certain factors such as hot and humid weather, as well as wearing clothes that do not breathe and rub the cysts, can cause inflammation.

HS is not a rare condition. It is estimated that it affects between 1/100 to 1/1000 in Western populations. Females are more likely to be affected, with a female to male ratio of 4 or 5 to 1. Symptoms of HS normally begin after puberty but rarely after menopause with the mean age of onset being 20-23 years old. The specific cause of HS is unknown, although it probably results from a combination of genetic and environmental factors. Talk to your doctor to decide on the best treatment if you or a family member has been diagnosed with HS. Support groups are also a good source of information and a way to connect with others affected with HS.

Source: Advocacy organizations associated with the condition.

 

Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Hidradenitis suppurativa" for support, advocacy or research.

European Hidradenitis Suppurativa Foundation eV

The purpose of the Foundation is the promotion of science and research in the field of disease hidradenitis suppurativa / acne inversa. The purpose of the Foundation is to be achieved by raising funds for the promotion of research projects in the field of disease hidradenitis suppurativa / acne inversa by other entities or persons. Purpose of the Foundation is also the training of doctors, patients and laypersons. The Foundation pursues exclusively charitable purposes within the meaning of the "tax-privileged purposes" of the tax code.

Last Updated: 1 Apr 2013

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Hidradenitis Suppurativa Foundation, Inc.

The mission of the Hidradentitis Suppurativa Foundation, Inc. (HSF) is to foster and encourage worldwide research by developing and supporting an interdisciplinary family of scientists and physicians devoted to studying the molecular and cellular basis of Hidradentitis Suppurativa (HS), in order to develop and deliver more effective forms of treatment and preventative measures for those with this common, debilitating, and eminently chronic disease.

Last Updated: 10 May 2013

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General Support Organizations

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How do you compare to others with this condition?

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Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Hidradenitis suppurativa" for support, advocacy or research.

European Hidradenitis Suppurativa Foundation eV

The purpose of the Foundation is the promotion of science and research in the field of disease hidradenitis suppurativa / acne inversa. The purpose of the Foundation is to be achieved by raising funds for the promotion of research projects in the field of disease hidradenitis suppurativa / acne inversa by other entities or persons. Purpose of the Foundation is also the training of doctors, patients and laypersons. The Foundation pursues exclusively charitable purposes within the meaning of the "tax-privileged purposes" of the tax code.

http://www.klinikum-dessau.de/klinikenundinstitute/hautklinikundimmuno ...

Last Updated: 1 Apr 2013

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Hidradenitis Suppurativa Foundation, Inc.

The mission of the Hidradentitis Suppurativa Foundation, Inc. (HSF) is to foster and encourage worldwide research by developing and supporting an interdisciplinary family of scientists and physicians devoted to studying the molecular and cellular basis of Hidradentitis Suppurativa (HS), in order to develop and deliver more effective forms of treatment and preventative measures for those with this common, debilitating, and eminently chronic disease.

http://www.hs-foundation.org/

Last Updated: 10 May 2013

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Scientific Literature

Articles from the PubMed Database

Research articles describe the outcome of a single study. They are the published results of original research.
The terms "Hidradenitis suppurativa" returned 127 free, full-text research articles on human participants. First 3 results:

Hidradenitis suppurativa: epidemiological study of cases diagnosed at a dermatological reference center in the city of Bauru, in the Brazilian southeast State of São Paulo, between 2005 and 2015.
 

Author(s): Tatiana Cristina Pedro Cordeiro de Andrade, Bruna Cortinóvis Vieira, Agnes Mayumi Nakano Oliveira, Tábata Yamasaki Martins, Tatiane Meira Santiago, Antônio Carlos Ceribelli Martelli

Journal: An Bras Dermatol. ;92(2):196-199.

 

Hidradenitis is a chronic inflammatory disease of the hair follicles. A treatment is necessary due to chronicity and psychological changes that patient present.

Last Updated: 24 May 2017

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Family physicians' role in hidradenitis suppurativa management.
 

Author(s): Valerio De Vita

Journal: Can Fam Physician. 2017 05;63(5):352-353.

 

Last Updated: 13 May 2017

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Metastatic Squamous Cell Carcinoma of the Pleura: A Rare Complication of Hidradenitis Suppurativa.
 

Author(s): Kiran Joglekar, Christopher Jackson, Dipen Kadaria, Amik Sodhi

Journal:

 

BACKGROUND Squamous cell carcinoma (SCC), also known as Marjolin ulcer, is a rare complication of hidradenitis suppurativa (HS). Metastatic SCC from HS typically involves the axial skeleton or abdominopelvic viscera. Metastatic disease to the lungs is a rare phenomenon with only three ...

Last Updated: 28 Dec 2016

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Reviews from the PubMed Database

Review articles summarize what is currently known about a disease. They discuss research previously published by others.
The terms "Hidradenitis suppurativa" returned 23 free, full-text review articles on human participants. First 3 results:

What is hidradenitis suppurativa?
 

Author(s): Erika Yue Lee, Raed Alhusayen, Perla Lansang, Neil Shear, Jensen Yeung

Journal: Can Fam Physician. 2017 Feb;63(2):114-120.

 

To provide family physicians with an understanding of the epidemiology, clinical features, diagnosis, and management of hidradenitis suppurativa (HS).

Last Updated: 17 Feb 2017

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Successful surgical treatment for squamous cell carcinoma arising from hidradenitis suppurativa: A case report and literature review.
 

Author(s): Cheng Huang, Zhichao Lai, Mu He, Biyun Zhai, Liangrui Zhou, Xiao Long

Journal: Medicine (Baltimore). 2017 Jan;96(3):e5857.

 

Hidradenitis suppurativa (HS) is a disabling inflammatory disease mainly affecting apocrine glands. Marjolin ulcer (MU) is a term used to describe a rare type of squamous cell carcinoma (SCC) arising within sites of chronic wounds or preexisting scars. Chronic HS may result in a rare ...

Last Updated: 18 Jan 2017

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Bacterial Colonization in Hidradenitis Suppurativa/Acne Inversa: A Cross-sectional Study of 50 Patients and Review of the Literature.
 

Author(s): Georgios Nikolakis, Aikaterini I Liakou, Stefanos Bonovas, Holger Seltmann, Nikolaos Bonitsis, Olivier Join-Lambert, Thomas Wild, Ioannis Karagiannidis, Silvia Zolke-Fischer, Klaus Langner, Christos C Zouboulis

Journal: Acta Derm. Venereol.. 2017 Apr;97(4):493-498.

 

It is unclear whether bacterial colonization in hidradenitis suppurativa/acne inversa (HS) comprises a primary cause, triggering factor or secondary phenomenon of the disease pathogenesis. Furthermore, the connection between certain bacterial species, the disease severity and its ...

Last Updated: 24 Nov 2016

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Clinical Trial Information This information is provided by ClinicalTrials.gov

A National Registry For Patients With Hidradenitis Suppurativa
 

Status: Recruiting

Condition Summary: Hidradenitis Suppurativa

 

Last Updated: 18 Sep 2017

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Treatment of Hidradenitis Suppurativa With Eth 755nm Alexandrite Laser
 

Status: Recruiting

Condition Summary: Hidradenitis Suppurativa

 

Last Updated: 11 May 2017

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Last Updated: 2 Nov 2017

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