Mal de debarquement syndrome (MdDS)

Common Name(s)

Mal de debarquement syndrome (MdDS)

Mal de debarquement syndrome (MdDS) is a condition that is characterized by long-term sensations of rocking or swaying. MdDS develops when an individual experiences a motion activity (cruises, airplane rides, or long car rides) and then the motion stops.

Symptoms of MdDS may include a rocking or swaying sensation, headaches, fatigue, light sensitivity, difficulty focusing, and anxiety or depression. Affected individuals typically comment that they experience a temporary relief in symptoms if they experience constant motion activities again, like driving in a car. Symptoms of MdDS typically last for months to years.

At this time, there is not an exact test to determine if someone is experiencing MdDS. After taking a health history (which reports the recent motion activity), in addition to other tests to exclude other conditions, a specialist can make a formal diagnosis. MdDS typically affects women between the ages of 40 and 50. The official cause for this condition is unknown.

Unfortunately, there is currently no cure for MdDS, but there are several options to help treat the symptoms. Common treatment options may include avoiding stressful or crowded situations, avoiding looking downward for extended periods of time, and certain types of exercise that focus on balance (vestibular). Support groups are good resources of support and information. Most general practice doctors are unfamiliar with MdDS at this time. Therefore, if you or someone you know is experiencing the symptoms of Mal de debarquement syndrome, seek out a specialist to discuss the most current treatment options.

Source: Advocacy organizations associated with the condition.

 

Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Mal de debarquement syndrome (MdDS)" for support, advocacy or research.

MdDS Balance Disorder Foundation

About the Foundation The MdDS Balance Disorder Foundation is an all-volunteer 501(c)(3) nonprofit foundation. The Foundation promotes international awareness of Mal de Débarquement Syndrome (MdDS) while advocating for those living with MdDS and seeking treatments and a cure for people suffering from this rare neurological disorder. Mission Statement The mission of the MdDS Balance Disorder Foundation is to promote education and research on Mal de Débarquement Syndrome (MdDS), a rare and poorly understood disorder of perceived motion. Goals To provide support and education for patients.

Last Updated: 16 Mar 2015

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Vestibular Disorders Association

VEDA's mission is to serve people with vestibular (inner ear balance) disorders by providing access to information, offering a support network, and elevating awareness of the challenges associated with these conditions.

Last Updated: 20 Feb 2013

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General Support Organizations

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How do you compare to others with this condition?

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Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Mal de debarquement syndrome (MdDS)" for support, advocacy or research.

MdDS Balance Disorder Foundation

About the Foundation The MdDS Balance Disorder Foundation is an all-volunteer 501(c)(3) nonprofit foundation. The Foundation promotes international awareness of Mal de Débarquement Syndrome (MdDS) while advocating for those living with MdDS and seeking treatments and a cure for people suffering from this rare neurological disorder. Mission Statement The mission of the MdDS Balance Disorder Foundation is to promote education and research on Mal de Débarquement Syndrome (MdDS), a rare and poorly understood disorder of perceived motion. Goals To provide support and education for patients.

http://www.mddsfoundation.org

Last Updated: 16 Mar 2015

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Vestibular Disorders Association

VEDA's mission is to serve people with vestibular (inner ear balance) disorders by providing access to information, offering a support network, and elevating awareness of the challenges associated with these conditions.

https://vestibular.org

Last Updated: 20 Feb 2013

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General Support Organizations

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General Resources

Bio-medical Literature

Listing of current bio- medical research http://www.mddsfoundation.org/professionals/literature/

Updated 16 Mar 2015

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Printable Brochure

File for Foundation brochure. Professionally printed brochures can be obtained by sending a request to mddsfoundation@yahoo.com. Please include mailing address and number of brochures needed.

Updated 16 Mar 2015

Open Doc
Understanding Mal de Debarquement Syndrome

Descriptive information about Mal de Debarquement Syndrome

Updated 16 Mar 2015

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MdDS Newsletter Library

Links to MdDS Newsletters.

Updated 16 Mar 2015

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MdDS Information Gathering Surveys

Please complete these surveys to establish more information to help understand Mal de De Debarquement Syndrome.

Updated 16 Mar 2015

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Grant Program Explanation

Grant Program Information for Clinical Research

Updated 16 Mar 2015

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Scientific Literature

Articles from the PubMed Database

Research articles describe the outcome of a single study. They are the published results of original research.
The terms "Mal de debarquement syndrome (MdDS)" returned 0 free, full-text research articles on human participants.

Reviews from the PubMed Database

Review articles summarize what is currently known about a disease. They discuss research previously published by others.
The terms "Mal de debarquement syndrome (MdDS)" returned 0 free, full-text review articles on human participants.

 
 
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Symptoms, Diagnosis, and Treatment

There are currently no related results available in GeneReviews.

There are currently no related results available in Genetic Testing Registry.

 
 
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Clinical Trial Information This information is provided by ClinicalTrials.gov

Transcranial Electrical Stimulation for Mal de Debarquement Syndrome
 

Status: Recruiting

Condition Summary: Mal de Debarquement Syndrome

 

Last Updated: 3 Sep 2015

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Transcranial Magnetic Stimulation for Mal de Debarquement Syndrome
 

Status: Recruiting

Condition Summary: Mal de Debarquement Syndrome

 

Last Updated: 2 Sep 2015

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