Median Cleft Upper Lip Cutaneous Polyps

Common Name(s)

Median Cleft Upper Lip Cutaneous Polyps

Also called Pai syndrome (PS), median cleft upper lip - cutaneous polyps is a combination of symptoms, or a syndrome, that is present at birth. Median cleft lip is the incomplete formation of the lip, creating a gap in the middle of the upper lip. Cutaneous polyps are abnormal growths on the skin, in this case in the nose and on the face. Many children born with the syndrome have widely spaced eyes and in extreme cases a split nose. Intellectual development is almost always normal. The cause is unknown, and the incidence of PS is likely underestimated. Children with PS should be monitored for infections of the lungs and speech impediments. Eyesight and pressure within the eye should be monitored over time. If eyesight does diminish, it can usually be fixed by surgery. If risk of lung or mouth infection is detected at birth, immediate surgery is necessary. Most people born with PS live to adulthood.

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Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Median Cleft Upper Lip Cutaneous Polyps" for support, advocacy or research.

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General Support Organizations

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Scientific Literature

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Research articles describe the outcome of a single study. They are the published results of original research.
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Clinical Trial Information This information is provided by ClinicalTrials.gov

There are currently no open clinical trials for this condition.