Multiple Osteochondromata

Common Name(s)

Multiple Osteochondromata

Description for this condition is not yet available.
 

Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Multiple Osteochondromata" for support, advocacy or research.

Logo
MHE and Me

MHE and Me is the member branch of the MHE Coalition, a 501(c)(3) non-profit organization, dedicated to children with this rare bone disorder and their families. Through the Bumpy Bone Club, information and support are provided to children through membership packages mailed to children, teens and young adults; online support; gatherings of families, and the We Care program, which provides gift packages to children undergoing surgery, as well as to their siblings. Children are encouraged to participate in the Bumpy Bone Club Magazine, and to tell their stories on our website.

Last Updated: 1 May 2013

View Details
Logo
MHE Coalition

The MHE Coalition provides support and information to those diagnosed with MHE/MO/HME. In addition, by funding and participating in research, awarding educational grants for qualified orthopedic residents to attend the prestigious Annual Baltimore Limb Deformity Course, and by working with our members and members of the medical and scientific communities, our organization is committed to finding ways to improve quality of life for those living with this rare bone disorder. Through MHE and Me we provide information, programs and support to children, teens and young adults with the disorder.

Last Updated: 26 Mar 2013

View Details

 

General Support Organizations

Not finding the support you need? Show General Support Organizations

 
 
Top

How do you compare to others with this condition?

Privately answer questions about your health. Let resources, you select, come to you.

Anonymously share and see how your answers compare with others with this condition while privately providing key pieces of information to medical researchers, disease advocacy groups, and others ONLY YOU select to help speed up cures and better alternatives.

 
 

Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Multiple Osteochondromata" for support, advocacy or research.

Logo
MHE and Me

MHE and Me is the member branch of the MHE Coalition, a 501(c)(3) non-profit organization, dedicated to children with this rare bone disorder and their families. Through the Bumpy Bone Club, information and support are provided to children through membership packages mailed to children, teens and young adults; online support; gatherings of families, and the We Care program, which provides gift packages to children undergoing surgery, as well as to their siblings. Children are encouraged to participate in the Bumpy Bone Club Magazine, and to tell their stories on our website.

http://www.mheandme.com

Last Updated: 1 May 2013

View Details
Logo
MHE Coalition

The MHE Coalition provides support and information to those diagnosed with MHE/MO/HME. In addition, by funding and participating in research, awarding educational grants for qualified orthopedic residents to attend the prestigious Annual Baltimore Limb Deformity Course, and by working with our members and members of the medical and scientific communities, our organization is committed to finding ways to improve quality of life for those living with this rare bone disorder. Through MHE and Me we provide information, programs and support to children, teens and young adults with the disorder.

http://www.mhecoalition.org

Last Updated: 26 Mar 2013

View Details

 

General Support Organizations

Not finding the support you need? Show General Support Organizations

 
 
 
 
Top

Scientific Literature

Articles from the PubMed Database

Research articles describe the outcome of a single study. They are the published results of original research.
The terms "Multiple Osteochondromata" returned 0 free, full-text research articles on human participants.

Reviews from the PubMed Database

Review articles summarize what is currently known about a disease. They discuss research previously published by others.
The terms "Multiple Osteochondromata" returned 0 free, full-text review articles on human participants.

 
 
Top

Symptoms, Diagnosis, and Treatment

There are currently no related results available in GeneReviews.

There are currently no related results available in Genetic Testing Registry.

 
 
Top

Clinical Trial Information This information is provided by ClinicalTrials.gov

There are currently no open clinical trials for this condition.