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Finding useful health information on the Internet can be difficult, but we’re here to help. This page gathers quality information from trusted sources. You can learn more about the disease, visit handpicked websites, and find resources to help you in your daily life. Need more information? Click the menu on the left to find more!

 

Myopathy, distal, tateyama type

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Overview

Type of Disease: Genetic, autosomal dominant Adult

Trusted Medical Sites

Genetic & Rare Diseases Information Center (GARD) GARD provides the public with access to current, reliable, and easy-to-understand information about rare or genetic diseases in English or Spanish.

Support Organizations

Support organizations can provide help and guidance in areas such as peer matching, education and training, and therapy and counseling.

Disease Resources

Resources can help guide your quest for factual and reliable information.
Displaying 1-3 of 3 results.
AAMDSIF Online Academy (webinars)
Added On: Dec 18, 2018
Category: General
200+ FREE webinars for patients, families and caregivers about rare blood cancers and bone marrow failure diseases.
Educational Resources
Added On: Dec 18, 2018
Category: General
Publications, links to patient conferences and webinars
Disease Information
Added On: Dec 18, 2018
Category: General
Descriptions of various rare blood cancers and bone marrow failure diseases.