Primary Immune Deficiency Disorders

Common Name(s)

Primary Immune Deficiency Disorders

Description for this condition is not yet available.
 

Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Primary Immune Deficiency Disorders" for support, advocacy or research.

Immune Deficiency Foundation

The Immune Deficiency Foundation is the national patient organization dedicated to improving the diagnosis, treatment and quality of life of persons with primary immunodeficiency diseases through advocacy, education and research.

Last Updated: 27 Aug 2015

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Jeffrey Modell Foundation

Vicki & Fred Modell established the Jeffrey Modell Foundation, a 501(c)3 nonprofit organization, in 1987, in memory of their son Jeffrey, who died at the age of fifteen from complications of Primary Immunodeficiency - a genetic condition that is chronic, serious and often fatal. JMF is a global nonprofit organization dedicated to early diagnosis, meaningful treatments and ultimately, cures through research, physician education, public awareness, advocacy, patient support and newborn screening.

Last Updated: 20 Nov 2012

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General Support Organizations

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How do you compare to others with this condition?

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Advocacy and Support Organizations

 

Condition Specific Organizations

Following organizations serve the condition "Primary Immune Deficiency Disorders" for support, advocacy or research.

Immune Deficiency Foundation

The Immune Deficiency Foundation is the national patient organization dedicated to improving the diagnosis, treatment and quality of life of persons with primary immunodeficiency diseases through advocacy, education and research.

http://www.primaryimmune.org

Last Updated: 27 Aug 2015

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Jeffrey Modell Foundation

Vicki & Fred Modell established the Jeffrey Modell Foundation, a 501(c)3 nonprofit organization, in 1987, in memory of their son Jeffrey, who died at the age of fifteen from complications of Primary Immunodeficiency - a genetic condition that is chronic, serious and often fatal. JMF is a global nonprofit organization dedicated to early diagnosis, meaningful treatments and ultimately, cures through research, physician education, public awareness, advocacy, patient support and newborn screening.

http://www.info4pi.org

Last Updated: 20 Nov 2012

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General Support Organizations

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General Resources

PrimaryImmune.org

The website for the national patient organization for primary immunodeficiency diseases.

Updated 30 Nov 2012

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Scientific Literature

Articles from the PubMed Database

Research articles describe the outcome of a single study. They are the published results of original research.
The terms "Primary Immune Deficiency Disorders" returned 0 free, full-text research articles on human participants.

Reviews from the PubMed Database

Review articles summarize what is currently known about a disease. They discuss research previously published by others.
The terms "Primary Immune Deficiency Disorders" returned 0 free, full-text review articles on human participants.

 
 
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Symptoms, Diagnosis, and Treatment

There are currently no related results available in GeneReviews.

There are currently no related results available in Genetic Testing Registry.

 
 
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Clinical Trial Information This information is provided by ClinicalTrials.gov

Primary Immunodeficiency in Kuwait
 

Status: Recruiting

Condition Summary: Primary Immune Deficiency Disorder

 

Last Updated: 3 Aug 2018

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A Study About Low Blood Pressure in Patients With Primary Immunodeficiency Disease Treated With Immune Globulin Products
 

Status: Recruiting

Condition Summary: Primary Immune Deficiency Disorder

 

Last Updated: 11 Jul 2017

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Gamma Globulin Observations and Outcomes Database for Patients With Primary Immunodeficiency Disease (GOOD-SHEPARD-PI)
 

Status: Recruiting

Condition Summary: Primary Immune Deficiency Disorder

 

Last Updated: 12 Sep 2017

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