MEBO RESEARCH

MEBO RESEARCH print

Mission Statement:

Unite sufferers and experts to initiate research into genetic and acquired diseases, including Trimethylaminuria, which result in malodor conditions; provide volunteer administrative services for testing, research, and public charity to sufferers around the world; public education campaign with 2 blogs in 2 languages, internet forum, email campaigns, and conferences; peer advocacy in two languages; actively involved in national and international rare disease organizations.

Conditions Served:

Trimethylaminuria, Rare genetic metabolic diseases defined or yet to be defined, and environmentally acquired conditions producing body and, or breath malodor.

Organization Name: MEBO RESEARCH
Status of Org: Incorporated Nonprofit
Type of Org: Condition – specific – International
Have 501(c)3 Status: Yes
Year Established: 2009
Professional/Medical Board: No
Board of Directors: Yes
Paid Staff: No
Services Provided in these Languages: English, Spanish
 
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Address & Contact

Organization Address

Phone: 786 228-6880
Toll Free #: +0800 0588015
Address 1: 13220 SW 35 Terrace
City: Miami
State: Florida
Zip/Postal Code: 33175-6931
Country: United States
Prefer to be Contacted: Email

Contact Persons

Name: Mrs Maria P de la Torre
Title/Position: Founder & Executive Director
Degree: BA
Phone: 3057245107
Prefer to be Reached: day
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Educational Materials

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Conferences & Workshops

  • Affected Individuals and/or Families

        Service and Support Information

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        Research Information

        Cohort Development

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        Disease Characterization

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        Research Management

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        Research Funding

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        Resources

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