Disease InfoSearch

Are you looking for disease information or support? You’ve come to the right place!  Simply type in the name of a condition above and Disease InfoSearch will locate quality information from a database of more than 13,000 conditions and thousands of support groups and foundations.

Are you looking for even more detailed information? Are you a healthcare provider or researcher? Select from a wide variety of fields in the Advanced Search to help you find listings of services and research interests that match your needs.

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National Innovation Challenge Winner!

Sharon's Award Video Sharon Terry President & CEO, Genetic Alliance

Reg4ALL was selected as the winner of the Collaborate|Activate Innovation Sanofi Challenge. Reg4ALL is an initiative to create a comprehensive, crowdsourced, cross-disease registry to help accelerate translational research for 1,000+ diseases.

Genetic Alliance and their team of partner organizations will receive $300,000 to bring their vision to life. Read more

In order to learn more about how Reg4ALL can benefit you and persons you care about, click here.

Answer questions about your health.
Let resources you select come to you.
... all while protecting your privacy.

Use privacy tools from Private Access to share key pieces of health information with medical researchers, disease advocacy groups, and others ONLY YOU select.

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Disease InfoSearch

To list your organization or add information about a disease, please access your account.