# A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

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CADASIL

Cerebral autosomal dominant arteriopathy with subcortical infarcts and leukoencephalopathy
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Support Type
Support Services
Displaying 21-26 of 26 results.
Area Served: International
Established: 1983
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
General Support Organization
Last Updated: 9 Jun 2020
Helping seriously ill children and their families cope with their pain, fear and isolation through entertainment, education and family activities.
Area Served: National
Established: 1972
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
General Support Organization
Last Updated: 4 Nov 2019
When a child dies, at any age, the family suffers intense pain and may feel hopeless and isolated. The Compassionate Friends provides highly personal comfort, hope, and support to every family experiencing the death of a son or a daughter, ...
Area Served: International
Established: 1980
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
General Support Organization
Last Updated: 18 Aug 2020
TOFS is a charity dedicated to improving the lives of all who were born with the TOF condition. For nearly forty years we have been helping families through the challenges of bringing up a child with OA/TOF, VACTERL and associated conditions. We ...
Area Served: United States
Established: 2016
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
General Support Organization
Last Updated: 24 Jun 2020
The UDN is a research study funded by the National Institutes of Health Common Fund. The UDN is made up of clinical and research centers bringing together experts from across the United States to solve the most challenging medical mysteries ...
Established: 1978
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
General Support Organization
Last Updated: 10 Jul 2020
Our mission is to celebrate and support men and families raising children with special health care needs. We do our work by connecting men with each other and with resources and information, by training men to tell their story and advocate ...
Area Served: International
Established: 2007
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
General Support Organization
Last Updated: 14 Jun 2020
Our mission is to ensure that everyone in the world with a rare disease has a safe place to go and connect with others like them.