Finding useful health information on the Internet can be difficult, but we’re here to help. This page gathers quality information from trusted sources. You can learn more about the disease, visit handpicked websites, and find resources to help you in your daily life. Need more information? Click the menu on the left to find more!
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Medical Disclaimer
The medical information on this site is provided as an information resource only, and is not to be used or relied on for any diagnostic or treatment purposes. This information is not intended to be patient education, does not create any patient-physician relationship, and should not be used as a substitute for professional diagnosis and treatment.
Cardiomyopathy Cataract Hip Spine Disease
Overview
Cardiomyopathy - cataract - hip spine disease, also known as Krasnow-Qazi syndrome, is the rare genetic combination of three symptoms. Dilated cardiomyopathy describes a weak heart that can't pump blood to your body with as much force as a healthy heart can. Cataracts are cloudly eyes. Hip spine disease is the irregularities in or weakening of joints in the hips and backbone. Cataracts are often the first symptom seen.
Trusted Medical Sites
Genetic & Rare Diseases Information Center (GARD)
GARD provides the public with access to current, reliable, and easy-to-understand information about rare or genetic diseases in English or Spanish.
Support Organizations
Support organizations can provide help and guidance in areas such as peer matching, education and training, and therapy and counseling.
Disease Resources
Resources can help guide your quest for factual and reliable information.
FSHD Basics
A brief overview of the disease.
Mal de Debarquement Foundation Blog
Read experiences of those living with Mal de Debarquement Syndrome in the blog. If you would like to add your experience please send it to connect@mddsfoundation for vetting and review.
Disability & Sexuality Webinar Series
Sexual health is an important but overwhelming and confusing part of growing up. This 4-part series of videos has accompanying PDFs, suggested accompanying books, and synopses of the 4 full webinars.
Cure CMD's YouTube Channel
Hundreds of hours of educational webinars about CMD
Grant Program Explanation
Grant Program Information for Clinical Research