# A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Finding useful health information on the Internet can be difficult, but we’re here to help. This page gathers quality information from trusted sources. You can learn more about the disease, visit handpicked websites, and find resources to help you in your daily life. Need more information? Click the menu on the left to find more!

 

Centronuclear myopathy

Congenital centronuclear myopathy
Get Update

Overview

Type of Disease: Rare Condition or Disease Genetic, autosomal recessive Genetic, autosomal dominant Intellectual disability (no physical disability) Physical disability (no intellectual disability)

Trusted Medical Sites

Genetic & Rare Diseases Information Center (GARD) GARD provides the public with access to current, reliable, and easy-to-understand information about rare or genetic diseases in English or Spanish.

Support Organizations

Support organizations can provide help and guidance in areas such as peer matching, education and training, and therapy and counseling.

Disease Resources

Resources can help guide your quest for factual and reliable information.
Displaying 1-2 of 2 results.
Welcome letter
Added By: Team Titin
Publish Date: Jun 1, 2016
Category: General
Language(s): English
This is a welcome letter for families newly diagnosed with titin related muscle disorders.
Patient Registry
Added By: Team Titin
Added On: Oct 5, 2012
Category: General
Language(s): English, Spanish and more via google translate
A patient registry for people with muscle disorders. The Congenital Muscle Disease International Registry (CMDIR) was created in 2009 to identify the global congenital muscle disease population for the purpose of raising awareness, standards of care,