# A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Finding useful health information on the Internet can be difficult, but we’re here to help. This page gathers quality information from trusted sources. You can learn more about the disease, visit handpicked websites, and find resources to help you in your daily life. Need more information? Click the menu on the left to find more!



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Type of Disease: Rare Condition or Disease Genetic, autosomal recessive Congenital onset Intellectual disability (no physical disability)

Trusted Medical Sites

Genetic & Rare Diseases Information Center (GARD) GARD provides the public with access to current, reliable, and easy-to-understand information about rare or genetic diseases in English or Spanish.

Support Organizations

Support organizations can provide help and guidance in areas such as peer matching, education and training, and therapy and counseling.

Disease Resources

Resources can help guide your quest for factual and reliable information.
Displaying 11-12 of 12 results.
The New Jersey Action Blueprint for TRANSITION to Adult Health Care
Added On: Nov 8, 2012
Category: General
Language(s): English
Defining transition age from 16-30 years of age, this project shifts the predominant paradigm in health care transition: from pediatrics being ready to “send” patients, to preparing the adult health care system to “receive” emerging adult patients.
My Health Passport
Added On: Nov 8, 2012
Category: Insurance
Language(s): English, Spanish
Teens with special needs can share important information with medical care providers when they visit a doctor’s office or clinic, or stay in a hospital. Two-sided PDF in English and Spanish.