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Autosomal recessive hypohidrotic ectodermal dysplasia syndrome

EDAEctodermal dysplasia, hypohidroticAnhidrotic ectodermal dysplasi
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Overview

Type of Disease: Genetic, autosomal recessive Congenital onset

Trusted Medical Sites

Genetic & Rare Diseases Information Center (GARD) GARD provides the public with access to current, reliable, and easy-to-understand information about rare or genetic diseases in English or Spanish.

Support Organizations

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Disease Resources

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Displaying 1-4 of 4 results.
AMP Lunch & Learns for Patient Advocacy Groups
Added On: Jun 12, 2019
Category: General
AMP holds periodic lunch events in Washington, DC for the patient advocacy group audience to inform about and discuss molecular testing (example: reimbursement challenges).
AMP Online Education
Added On: Jun 12, 2019
Category: General
AMP has an extensive collection of education about molecular testing.
Cure CMD's YouTube Channel
Added By: Cure CMD
Added On: Jun 11, 2019
Category: General
Language(s): English
Hundreds of hours of educational webinars about CMD
Transition from School to Adult Life
Added On: Nov 8, 2012
Category: General
Language(s): English, Spanish
Provides information, training, and technical assistance for youth, their families, and professionals in order to support informed and effective transition from school to adult life for youth with disabilities