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Ehlers-Danlos syndrome

EDS
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Support Type
Support Services
Displaying 1-10 of 31 results.
Established: 1999
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
Disease Support Organization
Last Updated: 5 Jul 2019
Is to provide Ehlers-Danlos information, awareness, education, guidance and support for all those affected. Also for their families, the general public and those in the medical community. We strive to bring recognition, identification and a correct diagnosis for ALL those ...
Area Served: International
Established: 2010
501(c)3 Nonprofit: No
Medical Advisory Board: Yes
Disease Support Organization
Last Updated: 5 Jul 2019
Mission is to develop the Treatment and Research Center for Rare Genetic Conditions. This center will specialize in Ehlers-Danlos Syndrome and will adopt other rare diseases as it grows and advances throughout the years. EDSers United was initially launched in ...
Area Served: United States
Established: 1985
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
Disease Support Organization
Last Updated: 5 Jul 2019
Ehlers-Danlos Society (formerly Ehlers-Danlos National Foundation) creates resources for those affected by the connective tissue disorder Ehlers-Danlos Syndrome.
Area Served: United Kingdom
Established: 1987
501(c)3 Nonprofit: No
Medical Advisory Board: Yes
Disease Support Organization
Last Updated: 5 Jul 2019
EDS UK was set up in 1987 to support, advise and inform those living with Ehlers-Danlos Syndrome. We aim to help them live a full, active and positive life. Over 25 years later, we remain the only UK ...
Area Served: International
Established: 2007
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
Disease Support Organization
Last Updated: 7 Feb 2020
Our mission is to advance knowledge through research and to educate the medical, allied sciences, and lay community about Chiari malformation, syringomyelia and related disorders.
Established: 1996
501(c)3 Nonprofit: No
Medical Advisory Board: No
Disease Support Organization
Last Updated: 3 Jan 2019
To Provide emotional, informational and navigational support to those who have special health care needs or a disability, their families and the professionals who serve them. OFN promotes family/professional partnerships and family-centered care, assuring services are offered as recipients ...
Area Served: United States
Established: 2006
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
Disease Support Organization
Last Updated: 11 Jun 2019
An independent nonprofit 501(c)(3) organization, the U.S. Pain Foundation is the leading patient organization for people with pain. Our mission: to empower, educate, connect, and advocate for individuals living with chronic illness that causes pain, as well as their caregivers ...
Area Served: State
Established: 1987
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
General Support Organization
Last Updated: 11 Jun 2019
We support children with special needs and their families by providing information, peer support, and education, and building partnerships with professionals and communities.
Area Served: United States
Established: 2009
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
General Support Organization
Last Updated: 3 Jan 2019
To provide free information, advice and advocacy services to patients with chronic illnesses, in areas including health and disability insurance, Social Security disability, employment discrimination, school-based accommodations, and resource location.
Area Served: San Antonio
Established: 1982
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
General Support Organization
Last Updated: 25 Jun 2019
The mission of Any Baby Can is to serve families with children and youth facing serious health or developmental challenges.