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Epileptic encephalopathy, early infantile, 10

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Type of Disease: Genetic, autosomal recessive Congenital onset Developmental disability (both intellectual and physical disabilities)

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Genetic & Rare Diseases Information Center (GARD) GARD provides the public with access to current, reliable, and easy-to-understand information about rare or genetic diseases in English or Spanish.

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Displaying 1-2 of 2 results.
Guide for New Parents
Publish Date: Jun 13, 2019
Category: General
Language(s): English
This guide was created by a group of fellow parents. When many of our children were diagnosed with CDKL5 Deficiency Disorder approximately a decade ago, almost no comprehensive information existed. We hope this guide will serve as a starting point.
CDKL5 Resource Library
Publish Date: Jun 13, 2019
Category: General
Language(s): English
Resource guides are available covering topics of Newly Diagnosed, Finding Your New Normal, Medical Advocacy, Educational Advocacy, Transition to Adult Care, and Clinical Care. Video from past conferences covering a broad range of therapeutic topics.