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Medical Disclaimer
The medical information on this site is provided as an information resource only, and is not to be used or relied on for any diagnostic or treatment purposes. This information is not intended to be patient education, does not create any patient-physician relationship, and should not be used as a substitute for professional diagnosis and treatment.
Ichthyosis male hypogonadism
Overview
Ichthyosis and male hypogonadism is an extremely rare genetic syndrome in which dead skin cells accumulate in thick, dry scales on your skin's surface and there is insufficient hormone production by the testes (male sex organs). Less than 1 in a million persons are affected by this condition. Depending on skin features, exposure to sunlight may improve or worsen the condition. In some cases, excess dead skin sheds much more easily from wet tanned skin after bathing or a swim, although the dry skin might be preferable to the potentially damaging effects of sun exposure.
Trusted Medical Sites
Mayo Clinic
A website that provides disease symptoms and treatment information.
Support Organizations
Support organizations can provide help and guidance in areas such as peer matching, education and training, and therapy and counseling.
Disease Resources
Resources can help guide your quest for factual and reliable information.
The Progeria Handbook; A Guide for Families and Health Care Providers of Children with Progeria.
This 100-page handbook helps answer many questions for children with Progeria about how to optimize quality of life through daily care and medical treatment. Contains basic health facts,daily care recommendations and extensive treatment guidelines.
AAMDSIF Online Academy (webinars)
200+ FREE webinars for patients, families and caregivers about rare blood cancers and bone marrow failure diseases.
Educational Resources
Publications, links to patient conferences and webinars
Disease Information
Descriptions of various rare blood cancers and bone marrow failure diseases.
USH Talks - Video Presentations on Usher syndrome
This video podcast delivers the latest in research developments and community stories directly to you.