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Finding useful health information on the Internet can be difficult, but we’re here to help. This page gathers quality information from trusted sources. You can learn more about the disease, visit handpicked websites, and find resources to help you in your daily life. Need more information? Click the menu on the left to find more!


Mucopolysaccharidosis type II

Hunter Syndrome
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Type of Disease: Rare conditions Genetic, X-linked Pediatric onset Developmental disability (both intellectual and physical disabilities)

Trusted Medical Sites

Mayo Clinic A website that provides disease symptoms and treatment information.
Genetic & Rare Diseases Information Center (GARD) GARD provides the public with access to current, reliable, and easy-to-understand information about rare or genetic diseases in English or Spanish.

Support Organizations

Support organizations can provide help and guidance in areas such as peer matching, education and training, and therapy and counseling.

Disease Resources

Resources can help guide your quest for factual and reliable information.
Displaying 6-7 of 7 results.
Usher Syndrome Blog
Added On: Oct 31, 2014
Category: Blogs
The USH Blog contains posts by individual authors on a variety of topics that affect the Usher syndrome community.
USH Trust Registry
Added On: Oct 31, 2014
Category: General
Language(s): English, Spanish, Dutch, German, Hebrew
The USH Trust is the largest international Usher syndrome registry in the world. It is a confidential, simple and secure place for everyone with Usher syndrome to sign up, be connected, and be informed of clinical trials and relevant studies.