Finding useful health information on the Internet can be difficult, but we’re here to help. This page gathers quality information from trusted sources. You can learn more about the disease, visit handpicked websites, and find resources to help you in your daily life. Need more information? Click the menu on the left to find more!
CLOSE
Medical Disclaimer
The medical information on this site is provided as an information resource only, and is not to be used or relied on for any diagnostic or treatment purposes. This information is not intended to be patient education, does not create any patient-physician relationship, and should not be used as a substitute for professional diagnosis and treatment.
Neonatal onset multisystem inflammatory disease
Chronic infantile neurological cutaneous articular syndromeCINCAInfantile multisystem inflammatory diseaseNOMID
Get Update
Overview
Chronic infantile neurologic cutaneous and articular (CINCA) syndrome, also known as 'neonatal onset multisystem inflammatory disease,' or NOMID, is a congenital inflammatory disorder characterized by a triad of neonatal onset of cutaneous symptoms (skin rash), chronic meningitis, and joint pain with recurrent fever and inflammation. CINCA is the most severe form of the cryopyrin associated periodic syndromes (CAPS) caused by mutations in the CIAS1/NLRP3 gene. About 50% of affected individuals have mutations in this gene. This condition is inherited in an autosomal dominant fashion. Source: Genetic and Rare Diseases Information Center (GARD), supported by ORDR-NCATS and NHGRI.
Trusted Medical Sites
Genetic & Rare Diseases Information Center (GARD)
GARD provides the public with access to current, reliable, and easy-to-understand information about rare or genetic diseases in English or Spanish.
Support Organizations
Support organizations can provide help and guidance in areas such as peer matching, education and training, and therapy and counseling.
Disease Resources
Resources can help guide your quest for factual and reliable information.
State Agencies Addressing Disabilities
Resources by state that can help families and professionals address disability issues
Support the Sexual Health of Young People Experiencing I/DD
Sexual Health Equity for Individuals with Intellectual/Developmental Disabilities (SHEIDD) Project
Youth Sexual Health Equity Program, Multnomah County Health Department
May 2018
A Resource Collection on Trauma-Informed Care
Comprehensive information on: Basic information about trauma; basic principles that define trauma-informed care; trauma and specific populations; building trauma-informed schools; and responding to disasters.
Health Care and the Medical Home
Resources from The National Center for Medical Home Implementation about the medical home–what it is, how practictioners can work with families to create a medical home for a child or youth with disabilities affecting health, and much more
TRANSITION: Health & Wellness Resources
A collection of resource curated from the National RAISE Center, which focuses on transition to adulthood for youth/young adults with disabilities, ages 14 and up.