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Nephropathic cystinosis

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Overview

Type of Disease: Rare conditions Genetic, autosomal recessive Congenital onset

Trusted Medical Sites

Genetic & Rare Diseases Information Center (GARD) GARD provides the public with access to current, reliable, and easy-to-understand information about rare or genetic diseases in English or Spanish.

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Disease Resources

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Displaying 6-7 of 7 results.
Usher Syndrome Blog
Added On: Oct 31, 2014
Category: Blogs
The USH Blog contains posts by individual authors on a variety of topics that affect the Usher syndrome community.
USH Trust Registry
Added On: Oct 31, 2014
Category: General
Language(s): English, Spanish, Dutch, German, Hebrew
The USH Trust is the largest international Usher syndrome registry in the world. It is a confidential, simple and secure place for everyone with Usher syndrome to sign up, be connected, and be informed of clinical trials and relevant studies.