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Paragangliomas 4

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Support Type
Support Services
Displaying 1-10 of 29 results.
Area Served: International
Established: 1983
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
Disease Support Organization
Last Updated: 11 Jun 2019
The Aplastic Anemia & MDS International Foundation (AA&MDSIF) is the world's leading nonprofit health organization dedicated to supporting patients and families living with aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and related bone marrow failure diseases. AA&MDSIF provides ...
Area Served: United States
Established: 1978
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
Disease Support Organization
Last Updated: 24 Jun 2019
Drive research, expand knowledge, and advance care for the NF community.
Area Served: Minnesota
Established: 2012
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
Disease Support Organization
Last Updated: 11 Jun 2019
To share local resouces, information and knowledge available for your loved one and offer a family support network and database. We strongly feel that every single case is just as important as a multi diagnosed case.
Area Served: United States
Established: 1981
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
Disease Support Organization
Last Updated: 24 Jun 2019
The CdLS Foundation is a family support organization that exists to ensure early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS, and others with similar ...
Area Served: International
Established: 2008
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
Disease Support Organization
Last Updated: 13 Jun 2019
VISION STATEMENT A future without Dupuytren disease. MISSION STATEMENT Our mission is to do whatever is needed to develop and test preventive treatments for Dupuytren disease and related conditions. Our core effort focuses on answering the greatest need in Dupuytren treatment: developing ...
Area Served: United States
Established: 1981
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
Disease Support Organization
Last Updated: 11 Jun 2019
The Foundation's mission is to improve lives and seek cures for those affected by ichthyosis and related skin types.
Area Served: International
Established: 2017
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
Disease Support Organization
Last Updated: 12 Jun 2019
To support those affected by recurrent meningitis and help fund research to find a cure.
Area Served: International
Established: 2017
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
Disease Support Organization
Last Updated: 21 Jun 2019
Our Mission is to provide support to individuals with SETBP1 disorder and their families, to promote discussion and fund research, and to bring awareness and education to the public.
Area Served: United Kingdom
Established: 2016
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
Disease Support Organization
Last Updated: 12 Jun 2019
Our mission is to improve the lives of everyone affected by Scleroderma and Raynaud's. We do this by investing in research, improving awareness and understanding of the conditions and providing information and support to all those affected.
Area Served: State
Established: 1987
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
General Support Organization
Last Updated: 11 Jun 2019
We support children with special needs and their families by providing information, peer support, and education, and building partnerships with professionals and communities.