# A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

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Protocadherin 19

PCDH19 female epilepsyPCDH19 FLEEarly infantile epileptic encephalopathy 9 (EIEE9)
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Support Type
Support Services
Displaying 1-10 of 28 results.
Area Served: International
Established: 1983
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
Disease Support Organization
Last Updated: 11 Jun 2019
The Aplastic Anemia & MDS International Foundation (AA&MDSIF) is the world's leading nonprofit health organization dedicated to supporting patients and families living with aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and related bone marrow failure diseases. AA&MDSIF provides ...
Established: 1995
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
Disease Support Organization
Last Updated: 12 Jun 2019
The Association for Molecular Pathology (AMP) is a professional association founded in 1995 to provide structure and leadership to the then-emerging field of molecular diagnostics. Through its Council and Committees, AMP pursues topics of importance to those at the forefront ...
Area Served: Minnesota
Established: 2012
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
Disease Support Organization
Last Updated: 11 Jun 2019
To share local resouces, information and knowledge available for your loved one and offer a family support network and database. We strongly feel that every single case is just as important as a multi diagnosed case.
Area Served: United States
Established: 1981
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
Disease Support Organization
Last Updated: 24 Jun 2019
The CdLS Foundation is a family support organization that exists to ensure early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS, and others with similar ...
Area Served: International
Established: 2010
501(c)3 Nonprofit: No
Medical Advisory Board: Yes
Disease Support Organization
Last Updated: 3 Jan 2019
Our mission is to improve the lives of children and families who are affected by PCDH19 Epilepsy (Girls Clustering Epilepsy). The PCDH19 Alliance focuses on raising and directing funds to scientific research with the goal of finding better, more effective ...
Area Served: International
Established: 2017
501(c)3 Nonprofit: Yes
Medical Advisory Board: Yes
Disease Support Organization
Last Updated: 21 Jun 2019
Our Mission is to provide support to individuals with SETBP1 disorder and their families, to promote discussion and fund research, and to bring awareness and education to the public.
Area Served: United Kingdom
Established: 2016
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
Disease Support Organization
Last Updated: 12 Jun 2019
Our mission is to improve the lives of everyone affected by Scleroderma and Raynaud's. We do this by investing in research, improving awareness and understanding of the conditions and providing information and support to all those affected.
Area Served: International
Established: 2013
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
Disease Support Organization
Last Updated: 11 Jun 2019
The Cute Syndrome is a 501(c)(3) public charity dedicated to funding research for and raising awareness of rare disorders like PCDH19 Epilepsy and SCN8A Epilepsy.
Area Served: State
Established: 1987
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
General Support Organization
Last Updated: 11 Jun 2019
We support children with special needs and their families by providing information, peer support, and education, and building partnerships with professionals and communities.
Area Served: United States
Established: 2009
501(c)3 Nonprofit: Yes
Medical Advisory Board: No
General Support Organization
Last Updated: 3 Jan 2019
To provide free information, advice and advocacy services to patients with chronic illnesses, in areas including health and disability insurance, Social Security disability, employment discrimination, school-based accommodations, and resource location.