Ataxia UK Disease Support Organization Last Updated: Aug 29, 2019 10:16:58 am Established: 1965 Area Served: United Kingdom We want to see a world that's free of ataxia. We fund medical reserach into finding a cure and treatments for the ataxias, and support anyone affected by any type of ataxia in the UK. Website: http://www.ataxia.org.uk Diseases Supported Ataxia • Ataxia with Vitamin E Deficiency • Cerebellar Ataxia • Cerebellar Ataxia Ectodermal Dysplasia • Cerebellar Ataxia Infantile with Progressive External Ophthalmoplegia • Cerebellar Ataxia, Areflexia, Pes Cavus, Optic Atrophy and Sensorinural Hearing Loss • Cerebellar Ataxia, Dominant Pure • Early-Onset Ataxia with Oculomotor Apraxia and Hypoalbuminemia • Episodic Ataxia with Nystagmus • Episodic Ataxias • Friedreich Ataxia (FA) • Hereditary Ataxias • Infantile onset spinocerebellar ataxia • Spastic ataxia Charlevoix-Saguenay type • Spinocerebellar Ataxia • Spinocerebellar ataxia 1 • Spinocerebellar ataxia 2 • Spinocerebellar ataxia 29 • Spinocerebellar ataxia 3 • Spinocerebellar ataxia 30 • Spinocerebellar ataxia 31 • Spinocerebellar ataxia 4 • Spinocerebellar ataxia 5 • Spinocerebellar ataxia 6 • Spinocerebellar ataxia 7 • Spinocerebellar ataxia 9 • Spinocerebellar ataxia autosomal recessive 1 • Spinocerebellar ataxia autosomal recessive 3 • Spinocerebellar ataxia autosomal recessive 4 • Spinocerebellar ataxia autosomal recessive 5 • Spinocerebellar ataxia autosomal recessive 6 • Spinocerebellar ataxia autosomal recessive with axonal neuropathy • Adult onset ataxia with oculomotor apraxia • Ataxia, sensory, autosomal dominant • Cerebellar ataxia, cayman type • Episodic ataxia type 1 • Episodic ataxia, type 5 • Episodic ataxia, type 6 • SPASTIC ATAXIA 5, AUTOSOMAL RECESSIVE • Spinocerebellar ataxia 35 • Spinocerebellar ataxia 36 • Spinocerebellar Ataxia Type 8 • Ataxia UK support and research for people with any kind of ataxia, except Ataxia Telangiectasia (A-T); however, we work closely with the AT Society, who support people with this type of ataxia. Show All 43Show Less Types of Diseases Supported Rare Condition or Disease • Genetic, autosomal recessive • Genetic, autosomal dominant • Mitochondrial disorder • Degenerative/progressive • Neuromuscular disorders • Neuordegenerative disorders • Physical disability (no intellectual disability) Show All 8Show Less 12 Broadbent Close London, N6 5JW United Kingdom 020 7582 1444 firstname.lastname@example.org 1 address 1 contact Show All Connect: Staff Speaks: English Telephone Translation: No (Translation services available for other languages) Our Organization Incorporated Nonprofit National Organization Not 501(c)3 Professional/Medical Board Board of Directors Paid Staff Our Financials This organization has not provided Financial details. N/A Funding for Services N/A Annual Budget N/A Funding for Research Our Membership N/A Membership Size N/A # of Chapters N/A Total Number on Mailing List N/A People with Conditions in Your Mailing List What We Do Support & Peer Matching Referrals to Matching Individuals/Families Peer Support Peer-to-peer Counseling Referrals to Local Chapter or Group Patient Navigators Translation Services Therapy & Counseling Professional Counseling Crisis Intervention Grief Counseling Medical Referrals Medical Care Clinical or Treatment Centers Rehabilitation Services Respite Care Genetic Testing Genetic Counseling Legal Advice Workplace Issues Malpractice Help with Adoption or Placement Financial Assistance Medical Care Transportation Assistive devices Insurance Scholarships Home Modifications Research Referrals to Research Studies Registry of affected individuals Blood and Tissue Sample Storage Education & Training Telephone Helpline E-mail List Training Speakers Bureau Advocacy Training Other Pen pal Program Summer Camp This entry will be permanently deleted. Are you sure you want to continue? Are you sure you want to change the status of this editor?