Children's Tumor Foundation Disease Support Organization Last Updated: Jun 24, 2019 01:45:32 pm Established: 1978 Area Served: United States Drive research, expand knowledge, and advance care for the NF community. Website: https://www.ctf.org Diseases Supported Neurofibromatosis • Neurofibromatosis type 1 • Neurofibromatosis type 2 • Schwannomatosis 95 Pine Street 16th fl New York, New York 10005 United States (212)344-6633 firstname.lastname@example.org 1 address 1 contact Show All Connect: Staff Speaks: English Telephone Translation: No (Translation services available for other languages) Our Organization Incorporated Nonprofit National Organization 501(c)3 Non-Profit Professional/Medical Board Board of Directors Paid Staff Our Financials N/A Funding for Services N/A Annual Budget N/A Funding for Research Funding Sources: Donations This organization receives funding from a company that produces a test or treatment for the condition it serves: No If yes, % of funding from such companies? Our Membership N/A Membership Size N/A # of Chapters N/A Total Number on Mailing List N/A People with Conditions in Your Mailing List What We Do Support & Peer Matching Referrals to Matching Individuals/Families Peer Support Peer-to-peer Counseling Referrals to Local Chapter or Group Patient Navigators Translation Services Therapy & Counseling Professional Counseling Crisis Intervention Grief Counseling Medical Referrals Medical Care Clinical or Treatment Centers Rehabilitation Services Respite Care Genetic Testing Genetic Counseling Legal Advice Workplace Issues Malpractice Help with Adoption or Placement Financial Assistance Medical Care Transportation Assistive devices Insurance Scholarships Home Modifications Research Referrals to Research Studies Registry of affected individuals Blood and Tissue Sample Storage Education & Training Telephone Helpline E-mail List Training Speakers Bureau Advocacy Training Other Pen pal Program Summer Camp Upcoming Events Conference: NF Conference When:Sep 21, 2019 12:00 PM (UTC -5:00 US EST). Ends on Sep 24, 2019. Multi-day event. Where:370 Lexington, Ste. 2100, New York, New York 10017 The annual NF Conference is the most important scholarly NF scientific event in the world, drawing more than 300 participants worldwide across a wide range of scientific disciplines. URL: https://www.ctf.org/get-involved/nf-conference Email: email@example.com Phone: 1-800-323-7938 Diseases: Neurofibromatosis type 1 Download Showing 1 of 1 events. Show All Show Less This entry will be permanently deleted. Are you sure you want to continue? Are you sure you want to change the status of this editor?