Chromosome 9 Disorder Advocates Disease Support Organization Last Updated: Jun 11, 2019 11:37:00 am Established: 2012 Area Served: Minnesota To share local resouces, information and knowledge available for your loved one and offer a family support network and database. We strongly feel that every single case is just as important as a multi diagnosed case. Website: http://www.facebook.com/9qdeletion Diseases Supported Chromosome 9 • Kleefstra syndrome • 46,xy,del(9)(q31.2q33.1) • 15260 Germanium St. NW Ramsey, Minnesota 55303 United States (612) 986-0403 firstname.lastname@example.org 1 address 1 contact Show All Connect: Staff Speaks: English Telephone Translation: No (Translation services available for other languages) Our Organization Unincoporated Nonprofit Province/State Organization 501(c)3 Pending Professional/Medical Board Board of Directors Paid Staff Our Financials N/A Funding for Services $100,000 Annual Budget N/A Funding for Research Funding Sources: Public This organization receives funding from a company that produces a test or treatment for the condition it serves: No If yes, % of funding from such companies? Our Membership 35 Membership Size 1 # of Chapters 35 Total Number on Mailing List 35 People with Conditions in Your Mailing List What We Do Support & Peer Matching Referrals to Matching Individuals/Families Peer Support Peer-to-peer Counseling Referrals to Local Chapter or Group Patient Navigators Translation Services Therapy & Counseling Professional Counseling Crisis Intervention Grief Counseling Medical Referrals Medical Care Clinical or Treatment Centers Rehabilitation Services Respite Care Genetic Testing Genetic Counseling Legal Advice Workplace Issues Malpractice Help with Adoption or Placement Financial Assistance Medical Care Transportation Assistive devices Insurance Scholarships Home Modifications Research Referrals to Research Studies Registry of affected individuals Blood and Tissue Sample Storage Education & Training Telephone Helpline E-mail List Training Speakers Bureau Advocacy Training Other Pen pal Program Summer Camp This entry will be permanently deleted. Are you sure you want to continue? Are you sure you want to change the status of this editor?