Our mission is to connect and network with FOD Families and professionals around the world and to provide ongoing emotional and grief support, family stories, practical information about living with these disorders, and medical updates to inform families of new developments in screening, diagnosis, research and treatment. We offer an active facebook group and google Email List, as well as opportunities for face-to-face networking and learning a few times per year. We also raise funds for future FOD Programs and Services. We are a 501c3 nonprofit - Tax ID # 83-0471342.
Inborn Errors of Metabolism • Metabolic Diseases
Deb Lee Gould, MEd, is a bereaved parent since 1985 and a Grief Consultant. She offers pro bono grief support to parents and other adult family members and friends living with the death of a child of any age and from any cause.