Intermountain PKU and Allied Disorders Association
Disease Support Organization
Last Updated:Jan 3, 2019 03:54:07 pm
Area Served:Regional (United States)
The mission of the Intermountain PKU and Allied Disorders Association is to provide education and resources to individuals and families, to encourage research, and to increase public awareness of these conditions.
My PKU Binder is a comprehensive manual on effectively managing PKU on a daily basis. These materials include the newest and best thinking on PKU and offer hundreds of tips, advice and what to expect from birth to adulthood both practically and emoti