Our Mission is-
-To support and advocate for individuals and their families diagnosed with rare neuroimmune disorders of the central nervous system
-To promote awareness and to empower patients, families, clinicians and scientists through education programs and publications
-To advance the scientific understanding of and therapy development for these rare disorders by supporting the training of clinicians-scientists dedicated to these rare diseases and by supporting basic and clinical research.
OUR GOAL IS TO IMPROVE THE QUALITY OF LIFE OF INDIVIDUALS WITH THESE RARE NEUROIMMUNE DISORDERS
SRNA is proud to offer a camp. The camp helps children with these disorders and their family members experience the joys of summer camp and develop relationships and connect with others who experience the same symptoms and conditions.
Search by name, country, state, and specialization to find the institutions and experts in rare neuroimmune disorders near you and connect your health care team to our medical experts to ensure you are getting the best care possible.
Attend lectures by leading clinicians, participate in workshops, and get to know people from around the world who have these disorders. All symposium talks are recorded and are available in the Resource Library and on our YouTube page.
Our Newsletters are delivered through email and, if you choose, through regular mail. Newsletters feature the latest information and inspiration about SRNA and our community, and highlight events, opportunities, and research updates.
We feature helpful blogs written by SRNA members, as well as clinical experts in rare neuroimmune disorders. The blogs cover a wide variety of topics that affect the lives of people with these disorders.