The Usher Syndrome Coalition's mission is to raise awareness and accelerate research for the most common cause of combined deafness and blindness. The Coalition also provides information and support to individuals and families affected by Usher syndrome.
The USH Trust is the largest international Usher syndrome registry in the world. It is a confidential, simple and secure place for everyone with Usher syndrome to sign up, be connected, and be informed of clinical trials and relevant studies.
USH Connections Conferences provide an invaluable opportunity to learn the latest on developing treatments from leading USH researchers while connecting with hundreds of impacted individuals, their families, and professionals serving the deafblind.